Here comes depression; First 3 sugeries

Well the first two were not bad. C-Section, then I got my appendix removed. The third one; My back surgery forever changed the person I am or have to be.

When I was around 12 my spine started to curve; I don't remember but maybe two days even in school not being in pain. I tried not to let it get the best of me. I played volleyball, basketball, some track, was a cheerleader. They actually found my scoliosis during a sports physical. God that was a long time ago. I did you to the doctor but they said that I didn't need a brace because the curvature wasn't bad enough. Big relief for me, cause I was a kid and wanted to play my sports. I can't remember ever even taking a Tylenol back then. Which isn't the case now. Anyway, as I had my babies, my spine curved more with each kid. The pain became unbearable. I was about 22 with two kids and went to several doctors. Every time they said that I needed surgery. This was not an easy decision though. Who was going to take care of the babies, me, everything. I used to do so many things, loved sports, loved allot of things.

Finally went to childrens hospital where there was a doctor that everyone said was the best and I was able to make an appointment with her. She said that I needed surgery and they were talking about a new type of back surgery where you go through the stomach to place the rod. I left so confused. We had no insurance, it was going to be like 80,000 and so I would have to try to get some help. Overwhelming.

I decided to go to several more doctors to find one that would absolutely not do a surgery unless it had to be done. I didn't need a friend, didn't care if they had bed side manners, just needed someone straight to the point. Its weird how i was thinking when I went to each one. I didn't judge them but I was looking for someone who wasn't too young, too old. Not to be rude just wanted someone with experience but yet knew of the new procedure that they were saying I needed. After several months of driving two kids an hour from our house to the closest doctors I found a doctor who had the reputation of never doing a surgery unless it had to be done, especially back surgeries.

Went into his office, he came in and wasn't real friendly, kinda seemed overloaded? He looked at my x-rays and told me that if I didn't have surgery I would be in a wheelchair at 30. Not allot of options there, I had two babies to raise. I was told that the surgery would be approx. 6-8 hours, two weeks at least in the hospital, they couldn't guarantee that my pain would go away and that it was a good possibility I could have more. I thought that was impossible at the time. I had like a 30 percent chance of being paralyzed. And remember feeling well compared to the pain I'm in i don't care. Would not be able to care for myself for a long time. In fact before they did the surgery my whole family had to go down and agree to take care of me for a long time. Like a year. I could not lift more than a gallon of milk for months and would be in a brace for six months. Some of my times may be off a little its hard to remember that long ago. This is when I started fearing everything.

They decided to go through my stomach or side. I guess this was the best option for me because I was curving but also my body was turning or twisting. I have a scar from the right side of my bellybutton, clear around the side of me , and it ends at my spine towards the middle. Big scar.



I was scared, and really was never the same. I wonder if all the time I was under anesthesia didn't help so much.



AFTER SURGERY AND TIME IN THE HOSPITAL



Seriously, I wanted to die. The pain was unbearable and why didn't someone stay at the hospital with me? I had an iv in my neck to pump pain medication in me when I pushed the button. I kept pushing it. Over and over. No relief. I tried to call the nurse but whoever cleaned my room forgot to put the call button thing on the bed where I could reach it. I didnt have a thing on the bed it was one of those big things they attached to the beds where you push the button. I couldn't move. I couldn't role on my own. I would wait for someone to walk down the hall at night and yell help, help me, please someone come in here. I need help. Finally a nurse came in and I told her I was soaking wet, needed to be changed, and that the pain was unbearable. She said it was from post surgery and to push button as much as needed. I pushed it all night. Was soaked again, and again.

I looked and saw the phone called the doctor, I was a total bitch by then. He came in and shit hit the fan. So glad I picked him.... Come to find out the iv had slipped out and was going down my hospital gown all night. Thats why I was so soaked. He went nuts. And I got pretty good care after that. I just wonder how much I had messed myself up trying to get the call button . Not having pain medication after that horrible surgery.

They had to deflate one of my lungs, which never fully got any better, I had tube going to my lungs to get fluid out, bag on me so i didn't have to get up to go to the bathroom. God it was horrible.



My husband brought my 1 year old and 3 year old in to see me. My baby wouldn't even look at me. Broke my heart. I remember these kids, they were bringing this thing in to stretch me it looked like one of those things that you lay on and turn yourself upside down to stretch you back. I wasn't having that; no chance. I didn't care, I already felt like my back was going to collapse. They fused three or four vertebrae and took one of my ribs to fuse onto my back where they had put several screws in me. Thats why I was in a cast for so long, needed time to grow around my rod and make its own bone. I can remember my mom being there and she kept saying, please be nice, be nice. After that first night though, hell I dont know if it was the first, second, third. I was in a self protect mode.

I kinda screwed myself by trying so hard not to hurt myself. when i called the doctor and told them that I wasn't getting on that thing, he said ok, but it is used to get you used to standing so that when we fit you for the brace you wont pass out because you haven't been out of bed for so long that its going to be tough for you to stand that long. I told him I could do it. lol.

To guys come in to fit me for my brace; back then they were like braces that you get put on when you break your arm or leg. Hard, the ones that you write on. I dont know what they use now. I stood up and they started wrapping wet stuff around, around, around, I was getting light headed. They said hold on we are almost done, I knew I was going to pass out. Just kept hearing them say hold on and wrapping faster and faster. Yea next thing i know, I hear, Shes going. Done. I passed out. But they did get done. God that brace was heavy, I could take it on or off, kept it for years, threw it away. Wish I had it now.
It was time to go home; I was scared, I had had allot of nurses and doctors taking care of me. What now?
Drove home in my moms van; Laying on the seat in the back. Crawling to get back there cause I couldn't bend. Was wishing I would just die there. I was so hungry which was weird, remember telling them, and they just kept getting me home. Had to stop and get meds. GOD, why dont they just call those damn things in! The trip home was about two hours, every bump felt like I was getting hit in the back with a hammer.




I have tucked all of the pain inside for so long, but almost made me afraid to do anything the last 20 years for fear I would have to have another one. Completely dependent on everyone else for everything I did. Showers, they had to roll me, feed me, everything. Everyone was doing there best I'm sure. They told me to never ski, ride horses, anything that would push or impact my back. I was a kid though, well allot younger than now. I let the fear completely control my life. I know several people who have had this surgery and it didn't work so they had a second, third, fourth. I just can't.



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