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Well if you have read my blog you know that I suck when It comes to dealing with death. But when your a parent you have to dig deep within and take care of your children. They are hurting probably in a different way and who know what they are thinking or the questions that they have.
Now allot of people told me to take my little one to a counselor. She had severe seperation anxiety, which I hadn't really heard of or ever dealt with. This had to be the hardest thing to watch ever. At first you think that if you just tell them you are not going to leave them, try to explain about death, heaven, they will be alright, but this was something that was not going away. My little one got worse.
God knows that she had reason. I was trying to live for my kids and damaging the hell out of them at the same time especially the young one. I did everything possible to reasure her that all was good, mommie was good, everything was going to be ok. It didn't work and was a couple years of heart breaking agony watching her go through this. She had watched me almost die a couple of times and kids aren't stupid. They listen. They hear. They know.
You can try to keep it from them, hide the horrible stuff, but they are smart and know whats going on.
She had moved to my parents with me, watched all of my illnesses, her big sister moved, her brother moved, her dad was living at our old house, her grandma honey had just died, we moved to a new place, and she started a new school. Just to mention the big things. I have so much guilt over this. Although you try so hard to protect the kids, they are suffering so much. She acted so strong and I think that finally she just broke.
Before I talk about the seperation anxiety I just want to put down a couple of things that may help someone whos child is going through the loss of someone.
1. We live really close to my grandmas old house and pass it everyday. She would cry horrible. At this time she was about 6. She didn't want anyone else living in grandmas house and was angry. I let her write a letter to the owners of the house after talking to them about it. She wrote a long letter and asked them to please take care of her grandma honey's house. She went into specifics, which I think was good therapy for her. How to water the grass, what grandma liked and how she wanted someone to live there who loved the house. She basically asked them to take care of the house. I took her to the mailbox and let her put it in. Which I know your not supposed to do but they were watching. She smiled. Even if you can't put it in the mailbox you can pretend to mail it.
2. This worked good! I take her to get balloons, which her and grandma had talked about. As many as she wants. She writes notes on them and we set them free. She watches very carefully. They go up so far and then you cant see them anymore. She says, "Grandma got it". And is calm again.
3. I was really scared to do this but, when the people got all moved into grandmas they invited us in. I was scared and didn't think I could be strong enough for her. We had damn near lived there for years. But I had to do it. They took us to each room and let her look around. She told them stories about each room. Its weird there wasn't any grandma left there which is the way it is supposed to be I guess. It looked beautiful, grandma would have loved it. I realize that you cant do this with all losses but it helped actually both of us.
4. Eventually, I just had to go all out and try to explain everything to her. She doesn't let things go. I told her my beliefs. That grandma was so happy now. She was playing with her little boy and had so much family in heaven. Went into the pain. etc. At this stage I was still shattered, my gutt would hurt as im consoling her. I did belive what I was saying, but I was still pissed that she left me. Very selfish. I'm told thats a phase you go through I dont know.
5. I let her write letters to heaven for grandma and mailed them, or let her mail them.
6. And after three years of the hell of seperation anxiety she has a full schedule, gymnastics, gate, band, school. Dont give them too much time to think. I had to keep her busy. Although I felt like crawling in bed and crying. Just wanted to sleep. I had to keep her moving, which actually was a big help to me also. I didn't like it though. lol.
7. She made a photo album of her and grandma
8. I let her hang pictures of her. She put one right by where she sleeps. I wasn't sure if that was a good idea. But if they request it then why not. She still looks at it everymorning and is concerned that she is forgettting grandma. So I encourage her to write down things that she remembers about her, anything. She has quite a collection.
9. She still sleeps with the blanket that grandma always used. Thats ok to me. So what. It was actually her blanket and grandma liked it so she let her use it. Now I will admit when grandma first died she wanted to wear one of her big nightgowns and I let her. She wore her nightgown to sleep for about a week and the phase was over. She said that it smells like grandma and "thats all I need"
10. Let them talk, talk, talk, if they will. I didn't know most answers. When I didn't know how to answer I just told her that. It will drive you a little crazy. Our minds are trying to process all of this shit and questions are coming left and right. She was bad with this, I mean all day everyday. So what I did was tell her ok, we are going to talk about anything on your mind, grandma, memories, whatever you want, but only at 6:00 at night. The rest of the day we are going to try real hard to be happy and look for things to be happy about. I was very surprised to hear her agree to that. It worked, everynight we would talk about the same stuff until I thought I was going to go crazy. Everntually the conversation got shorter. Then they stopped. She had either talked it out or found anotherway to cope that was working
I am sure I will think of more but thats a start. She has allot of faith in God and I don't even have to push her. Prayers really helped her, she would say them and then say now what do I say? I told her you say whatever you want to, so she will go on for fifteen minutes. She tells God to say hi to grandma and did she get her balloons, on and on. Seems to really help her and actually I enjoy listening to her.
I never thought she would get better or get rid of the anxiety and sepreation anxiety, but she has. Thank God. Shes doing great. It took a long time. So much patience. But we did it.!!!!
Showing posts with label operations. Show all posts
Showing posts with label operations. Show all posts
Tuesday, September 29, 2009
Thursday, September 17, 2009
Struggling to write; Before the death of my friend, grandma, angel
I know that I have spoken allot about my grandma and how she helped me through the hard times. I wish she was here. Although I'm sure that she is glad she is with he little boy that she lost so young, her husband, brothers, sisters, mom and dad and so on. I have went through alot of different moods and emotions when it comes to here death but it was by far the hardest night of my life. I can go through stuff, but I hate to see others in pain. I do NOT handle death good at all. I suppose for selfish reasons. I get close to very few people but the ones that I do; I want around forever. So please bare with me, I am going to write this whole blog on my grandma and her death. The worst day of my life July17, 2006. I hope the date is right. Sometimes it seems it has been forever, then other days it seems she was just here. I moved a few blocks from her on purpose when I had to move from the blood clots. And I know that when I'm talking about how special she is most of you probably think, well so was my grandma. But I'm going to do my best at this and it may take several days to complete so be patient please.
As a child most of my memories are with her. Not because I didn't have good parents. She was the one who watched me and my three brothers while my parents worked. She was the most beautiful woman I had ever saw. Dark Black hair, perfect face, calm as an angel. She gained weight when she lost her little boy at the age of 3 or 4. She was still beautiful. Inside and out. I used to hug her and try to get my arms wrapped all the way around her. She gave us birthday parties every night that we stayed the night so we wouldn't bother papa. I used to watch her pick fuzz off of socks when they got out of the dryer for hours. She used to let us pick rubarb out of the neighbors yard and dip it into sugar. She always had breakfast, lunch, and dinner on, which after papa died and she never really cooked allot i figured that it may have just been expected of her, I dont know if she loved it? The most important thing about my grandma was that from the time I was little till the time she passed away, she never, once, made me feel like I was in her way, bothering her, putting her out, i was always welcome and even if she was tired of me she never showed it. My parents used to take us to church every weekend and I never asked but later in life grandma told me that she was so mad at God for so long for taking her little boy. She didn't understand. I guess I would feel like that too. She wasn't hateful about it, and I think she really wanted God in her life. And he was. She used to read the bible to me everynight when I was sick out of proverbs. Until my nerves were bad. lol. And of all the things she could leave me when she died, she left me her bible. What a blessing. And it made my heart feel good when I went through it. She never lost her faith, there were pictures of everyone who had gotten sick in the family, letters, things to remember. I will cherrish it forever, although i do have to tell you I have only opened it once. Maybe someday.
I think that I used to talk to my grandma atleast five times a day as a teenager and into my twenties. She always answered. lol. Grandma did everything for everyone. Her family was her life. And she was our life. She held everyone together, and would be disappointed if she knew how it was now. But would understand. She loved being in the womens' club and throwing parties. lol. She loved to laugh and have fun. And second best thing between me and grams was that she was the one person in my life that completely knew me..... I could dance, sing, act like I was funny, never ever had to act like I was someone else around her. Boy. do I miss that.
I moved into this house in september, grandma came over with our help and probably a liitle coaxing. I was just trying to get her out of the house. She hadn't been out in sooo long. Well, it was aweful. She didn't say that but me and my husband were helping her up our little stairs in the front and it sounded like her bones were breaking when we would even put our hands under her arms to help her up. I never again asked her to come over or pushed her to get up. It was a horrible sound and very sad.
In the next months she would lay in bed, she had one of those hospital beds in her frontroom. She was so sick. One thing after the other. She had high blood pressure, and diabetes at the end. Every pill had a side effect and was taken care of by another pill. I tried to make her laugh, but it didn't happen often now. I tried to make her want to live, but i think she had lost her will. She had her dog, which I swore saved her life when papa died, but I'm not sure she even worried about him anymore. Very sick. Thank God she had also given us her dog. I think that he has saved us. Just a little part of grandma. He ran to her house from mine for about a month. It was sad. Not so much anymore though. He is old but still something to hold onto.
The last time we took her to the hospital they had to transport her to a different city. about thirty minutes from here. At the hospital she was talking to me. I can remember trying to tease her. She told me never to let my little one be sad about her. I asked her to please fight grandma, please, what will I do without you. She sighed and said, "I'm not worth shootin" That used to be her little saying. I said "But who will be my best friend? Who will talk to me?" "She said, "I'm ready to go." I just ignored her.
She was transferred by ambulance and seemed to get worse right away. This first time I went in to see her, it was horrible. It wasn't even like grandma. I decided to stay a couple of nights with her after a few days. It was weird she would go from cardio, to neuro, to this and that. All over the hospital. The they told us that we had to wear a gown and mask to get into see her, I thought It was to protect her. But as Im writing I remember that she had something. Cant remember what it was. Her temperature was crazy, up and down. I was really worried about her heart. I could see her breathing and it looked like she was having allot of trouble. She was a tough woman too. I had never heard her moan like this. Just makes your stomach hit the floor. Grandma had survived breast cancer, something in her throat, both knees were operated on, both ankles had screws in them, she had her spine fused.
Just something she laughed about all of the time; A guy came over to check on her oxygen or some equiptment she was on at her house. I was in the kitchen and she said to him, "My family thinks that I have more than one screw loose. Do you think thats right?" He got so mad and said that was aweful for us to say. I made her tell him that she actually did have a real screw loose in her ankle, actually both ankles and he settled down. She laughed about that for a year. lol.
This first night I was at the hospital: to be cont. cant take anymore for the night.
As a child most of my memories are with her. Not because I didn't have good parents. She was the one who watched me and my three brothers while my parents worked. She was the most beautiful woman I had ever saw. Dark Black hair, perfect face, calm as an angel. She gained weight when she lost her little boy at the age of 3 or 4. She was still beautiful. Inside and out. I used to hug her and try to get my arms wrapped all the way around her. She gave us birthday parties every night that we stayed the night so we wouldn't bother papa. I used to watch her pick fuzz off of socks when they got out of the dryer for hours. She used to let us pick rubarb out of the neighbors yard and dip it into sugar. She always had breakfast, lunch, and dinner on, which after papa died and she never really cooked allot i figured that it may have just been expected of her, I dont know if she loved it? The most important thing about my grandma was that from the time I was little till the time she passed away, she never, once, made me feel like I was in her way, bothering her, putting her out, i was always welcome and even if she was tired of me she never showed it. My parents used to take us to church every weekend and I never asked but later in life grandma told me that she was so mad at God for so long for taking her little boy. She didn't understand. I guess I would feel like that too. She wasn't hateful about it, and I think she really wanted God in her life. And he was. She used to read the bible to me everynight when I was sick out of proverbs. Until my nerves were bad. lol. And of all the things she could leave me when she died, she left me her bible. What a blessing. And it made my heart feel good when I went through it. She never lost her faith, there were pictures of everyone who had gotten sick in the family, letters, things to remember. I will cherrish it forever, although i do have to tell you I have only opened it once. Maybe someday.
I think that I used to talk to my grandma atleast five times a day as a teenager and into my twenties. She always answered. lol. Grandma did everything for everyone. Her family was her life. And she was our life. She held everyone together, and would be disappointed if she knew how it was now. But would understand. She loved being in the womens' club and throwing parties. lol. She loved to laugh and have fun. And second best thing between me and grams was that she was the one person in my life that completely knew me..... I could dance, sing, act like I was funny, never ever had to act like I was someone else around her. Boy. do I miss that.
I moved into this house in september, grandma came over with our help and probably a liitle coaxing. I was just trying to get her out of the house. She hadn't been out in sooo long. Well, it was aweful. She didn't say that but me and my husband were helping her up our little stairs in the front and it sounded like her bones were breaking when we would even put our hands under her arms to help her up. I never again asked her to come over or pushed her to get up. It was a horrible sound and very sad.
In the next months she would lay in bed, she had one of those hospital beds in her frontroom. She was so sick. One thing after the other. She had high blood pressure, and diabetes at the end. Every pill had a side effect and was taken care of by another pill. I tried to make her laugh, but it didn't happen often now. I tried to make her want to live, but i think she had lost her will. She had her dog, which I swore saved her life when papa died, but I'm not sure she even worried about him anymore. Very sick. Thank God she had also given us her dog. I think that he has saved us. Just a little part of grandma. He ran to her house from mine for about a month. It was sad. Not so much anymore though. He is old but still something to hold onto.
The last time we took her to the hospital they had to transport her to a different city. about thirty minutes from here. At the hospital she was talking to me. I can remember trying to tease her. She told me never to let my little one be sad about her. I asked her to please fight grandma, please, what will I do without you. She sighed and said, "I'm not worth shootin" That used to be her little saying. I said "But who will be my best friend? Who will talk to me?" "She said, "I'm ready to go." I just ignored her.
She was transferred by ambulance and seemed to get worse right away. This first time I went in to see her, it was horrible. It wasn't even like grandma. I decided to stay a couple of nights with her after a few days. It was weird she would go from cardio, to neuro, to this and that. All over the hospital. The they told us that we had to wear a gown and mask to get into see her, I thought It was to protect her. But as Im writing I remember that she had something. Cant remember what it was. Her temperature was crazy, up and down. I was really worried about her heart. I could see her breathing and it looked like she was having allot of trouble. She was a tough woman too. I had never heard her moan like this. Just makes your stomach hit the floor. Grandma had survived breast cancer, something in her throat, both knees were operated on, both ankles had screws in them, she had her spine fused.
Just something she laughed about all of the time; A guy came over to check on her oxygen or some equiptment she was on at her house. I was in the kitchen and she said to him, "My family thinks that I have more than one screw loose. Do you think thats right?" He got so mad and said that was aweful for us to say. I made her tell him that she actually did have a real screw loose in her ankle, actually both ankles and he settled down. She laughed about that for a year. lol.
This first night I was at the hospital: to be cont. cant take anymore for the night.
Tuesday, September 15, 2009
"Your going to die a young woman" Again? Really?
Driving, feeling sharp pain under ribs. Its probably gas. lol. Maybe anxiety? Heading to grandmas. Trying to figure out how I'm going to get her to go to the hospital. I always felt allot better once I got into grandmas town. Elevation change ya know. So I get there and talk to her and pretty much tell her that I'm going to call the ambaulance. She hated when I did that. After papa died I don't ever really think she had the drive to live. She would alway say "When I go" or "I'm ready to go" I hated that. She was my wisdom, friend, grandma, angel from heaven. She held us together. We all had her in common. We all loved her.
She was giving me that look.... I walked outside and felt weird. I sat down on the cement. I remember it was warm. Got the strength to go back in and sat on her floor. I was looking at her, and thinking at the same time i need to get to the hospital. I finally just said "Um guys I need to go to the emergency room." I don't know if they thought I was just shitting them or what. I don't know who I left my little one with, although I knew she was being taken care of . I got in my car and drove to the hospital.
Well if you remember from the blood clots story, at first they had told me it was my gallbladder. Yep thats what it was. The only good thing about blood clots is if you tell them you have a history of it. Trust me you don't sit in the waiting room. lol.
The surgery should have been a piece of cake. But no not with me. Since I had the blood clots and im not sure if I was still on cumadin to thin my blood. But it had to be thin and then after words they had to put something in it so that I wouldn't get clots again. It was one of the best hospital visits I ever had.
Guess who was in the room next to me? Grandma. I had my surgery, let them get my blood right and then went next door. I feel bad, I dont know what was wrong with her that time. But I went next door and said "Hi Grandma, guess who is in the room right next to you?" she smiled. She said "Hunny, shouldn't you be in bed getting ready for surgery?" I said "No, I'm done now lets get out of here. Hurry and get your clothes. I was acting like I was just going to take her out of there" Its silly but I felt good having her close to me. We both were in there several days. And the best part is that everyone always brought grandma stuff to hospital, she loved presents. And she would say "Well, thats sad, dont you think you should get tammy something." So I got gifts too!!!lol.
This was the only time I've been in the hospital where I was speechless. Mad. Confused???
The doctor that was doing my surgery told me that I was going to die a young women if I didn't get into a lower altitude. He was kinda rude about it, but maybe thats what I needed. He said that with my history my organs were just going to keep failing. Pissed my husband off. Of course he loves the mountains. I was wrong no matter what I did. "How does he know how you feel in the altitude?" well, I feel like shit I said. I walk around a big house by myself on oxygen all day and wait for you to get home. That didn't go over well. lol.
Never went back home for more that a few hours. Back at moms. What the hell was going on? Its an awful thing to be trying to please everyone and not make anyone mad or have to make hard decions. I took it a day at a time. My parent never really got into anything or told me what to do, but they were very insistant that I stay in a lower altitude. Which is not as simple as it seems.
Every other house is in forclosure and we are going to try to sell our house.? We stayed at my parents and my husband would come down like once a week. It was hard.
I realized that I had to get better and healthier, in order to make better, healthier, decisions. It took almost a year. Then I told my husband, I have to get a life! A home! As I'm writing this, I remember how mad I was at him for not being with us. Working all the time. But now I'm thinking what a burden that was to put on him. Now he was going to be paying for two houses? I wanted him to move down with me, but I think, well i know, that he was trying to wait it out. Let my lungs and body get healthier, so I could move home.
My 6 year old was going through horrible seperation anxiety, which I didn't even know of. It was horrible. I'm so glad that she is doing better. She had a rough couple of years and is the type of kid who doesn't think like a kid. She has to understand everything, you can't hide anything from her. Eventually I had to get her a doctor. Just broke my heart. The shit everyone was going through over me and I'm not feeling sorry for myself. Seriously, It was horrible to sit by and watch all who I loved going through hell and I couldn't do anything about it. I could help my daughter but It took two years to get her better. My doctor told me as I get better, she will get better. And she was right. Thank God.
But going through this with her, helping my grandma as much as possible, trying to start living again, functioning again, gave me inner anger that I would have to realease at some point. And All of it finally came out the week my grandma died.
Thursday, September 10, 2009
Total Fear of returning home; "Our dream home" God how I loved it but...
Well it was time to move home. I was scared! I knew that my husband would be working all of the time. It was very hard moving out of a comfort zone. My house was about an hour from my parents. I loved my home and missed it sooo much. But I had barely lived through blood clots and it was a risk. To be honest I dont even know why I took it. It was my kids home, it was our dream home, that my husband built from ground up for us. But it was a good 40 minutes from the closest doctor or hospital. My gut was telling me how stupid it was but in my own way I knew how much everyone had gone through for years with me being sick and I wanted to just make their life normal again.
I cried like a baby when I went home. But it was so good to be there again. Now I started noticing right away that I couldn't breathe well. I was put on oxygen which sucked so bad. I was what? 35 on oxygen walking around. Alive, but on oxygen. I couldn't really leave my house unless I went to a lower elevation so as I got a little better I would drive to grandmas or moms. It was stupid. I would stay for a week at a time.
Oxygen was like 500 a month up at my house. I layed in bed allot. Just like before. Pretty much in the middle of nowhere. Which I used to love. But i was scared now. If I got blood clots again, I had pretty much no chance of surviving from that far away. Here comes the anxiety big time. Pure fear.
The smell of my own house. Looking out the window at the beautiful mountains, fields of green grass. Always deer, elk, all kinds of wildlife. I tried, but it was really taking a tole on me. See when you go to a higher altitude your blood gets thicker. Which is ok unless you just had multiple clots in both of your lungs. I kept thinking I was going to get better. My heart felt like it was beating out of my chest all of the time. I didn't understand. It was explained to me that I had so much scar tissue in each of my lungs that my heart had to work so much harder to get oxygen to it. So oxygen goes through a layer to put get into your blood, but mine had to go through several because of the scar tissue. They said that it could take up to ten years for my lungs to heal. Could I live like this for that long? Did I want to? What to do?
Sounds like a pretty easy answer right?
Ten years earlier; Driving to the property that we had always dreamed of having. Yellow sunflowers lined both sides of the dirt road to it. We sat on the hill to see where the sun would hit at each time of the day. Watched all of the wildlife. It was like heaven. We had our dream house planned. Material things yes. Still important, I had allot of good times there, happy times. But yet, in the end I had to make a choice that would effect my children, husband, our lives. How lucky we were. We had enough money to pay for the property which had a pond on it, ten acres, it was beautiful. Lots of people thought we were crazy to pay what we did for that property. But we had always wanted it. Well just like life, you hit alot of obstacles. You always run into things that you didn't expect, when it comes to expenses. Right as the roof was going up the hurricane hit. Lumber prices trippled and needless to say, the loans started building.
Never the less, we raised two kids there and our little one for about four years. It was a place where everyone was always welcome. My kids always had friends there and it was far enough out of the little town. Just right. We had great times. I enjoyed every moment I had with my children there.Well until they became teenageers. lol. no really. I was going to live there forever. I'm not a person who likes change and never ever thought that I would leave my home. I used to tell my husband "If you are planning on selling this one, your leaving without me. lol" And now I was the one who needed to move.
When I went home I was happy to be there but scared to death. All of the what ifs started. What if I pass out from lack of oxygen and my little one is here alone.?? on and on. And who was there for me?? I thought everyone would miss me. Would come see me. Come help me or just visit. Another great lesson in life. Don't think that you are too important to people. Very good lesson for me. Just because they are important to me doesn't mean I am to them. In their defense everyone has their own family, responsibilities, commentments, lives. I felt sorry for myself cause nobody was there for me. But it really wasn't their responsibility. Although, I will tell you. This lesson also taught me to always be there for people who need me. I do my best. And I would have never made it through it if it wasn't for my kids, dad and mom, grandma, a couple friends, and although I have held a huge, silent grudge cause my husband was always at work, he in his own way was there.
Our house was big. I couldn't keep up with it. Just not enough oxygen. We were at about 7000 ft. in elevation. I started slipping back into deep depression, fighting like hell everyday, not to ever go to that dark
place again. I used to set there and look. Just look. I loved that place. I had a memory for every single spot in that house. I loved the property. But as time went on, I don't know. I just didn't know what to do. I knew that if we were forced to move due to my health it was going to be a huge deal. We were broke from doctor and hospital bills. Which makes you feel oh so much worse when your laying there in bed. I truely felt like my husband felt that I had caused all of this harship and recented me for it. He says no. But how could he not? And I did, I was sick for so long. It makes it so much harder when your racking up medical bills and can't even help pay for them. Im sure that he recented me and then I recented him for recenting me. Confusing.
My parents and grandma lived at about 5000 ft elevation. Which is weird that it made such a huge difference but I pretty much ran down here every chance I got.
It may have saved my life. I didn't need oxygen.
And I will tell you something that is kind of embarrassing because I don't know how many people have these feelings. But, when I thought it was going to snow. I took off. It didn't hardly snow where grandma was. I mean it freaked me out. Anxiety got out of control. I felt clastophobic, stranded. Alone, desperate. And I was raised in the snow. I drove in snow my whole life. I jsut dont understand. Also, the cold weather really started getting to me. I absolutely began to hate it. I swear it was harder to breathe. At grandmas only fifty minutes away it was alway aboout 15 degrees warmer. My whole marriage I never went anywhere without my husband, and now i was running constantly.
When I would get to lower elevation it was like something heavy was being lifted off of my chest. I didn't need oxygen. I loved it here. But I missed my house. And I know its just material; its the memories that get me.
I had never really been in a city. this is by no means a big city but it has everything you need. I was used to driving an hour to even get groceries. It was kina nice. I liked hearing neighbors for the first time. Made me feel better, which is weird cause I used to get so mad when someone would build a house around ours in the country. lol.
I like talkig to people and my daughter playing with the neighborhood kids. Little things, that made my life so much easier and my anxiety so much better.
At this time as I was going back and forth i felt good about it cause I felt good at the lower altitude. My grandma was getting sick though, she had allot of things wrong with her. So this was my chance; I took care of her. I loved being with her. It was sad though, she started just functioning, trying to make it through the day. I would try to make her laugh, she would. But you could tell it was jst for me. She also had a back surgery, and I'm sure that she never was the same.
So was trying to help grandma, kept going back and forth, and got a call. My grandma was really sick but wouldn't go to the doctor. She hated when I would come because she know I would call the ambulance. lol. So went down to get grandma to the doctor, well God had a different plan for me.
I cried like a baby when I went home. But it was so good to be there again. Now I started noticing right away that I couldn't breathe well. I was put on oxygen which sucked so bad. I was what? 35 on oxygen walking around. Alive, but on oxygen. I couldn't really leave my house unless I went to a lower elevation so as I got a little better I would drive to grandmas or moms. It was stupid. I would stay for a week at a time.
Oxygen was like 500 a month up at my house. I layed in bed allot. Just like before. Pretty much in the middle of nowhere. Which I used to love. But i was scared now. If I got blood clots again, I had pretty much no chance of surviving from that far away. Here comes the anxiety big time. Pure fear.
The smell of my own house. Looking out the window at the beautiful mountains, fields of green grass. Always deer, elk, all kinds of wildlife. I tried, but it was really taking a tole on me. See when you go to a higher altitude your blood gets thicker. Which is ok unless you just had multiple clots in both of your lungs. I kept thinking I was going to get better. My heart felt like it was beating out of my chest all of the time. I didn't understand. It was explained to me that I had so much scar tissue in each of my lungs that my heart had to work so much harder to get oxygen to it. So oxygen goes through a layer to put get into your blood, but mine had to go through several because of the scar tissue. They said that it could take up to ten years for my lungs to heal. Could I live like this for that long? Did I want to? What to do?
Sounds like a pretty easy answer right?
Ten years earlier; Driving to the property that we had always dreamed of having. Yellow sunflowers lined both sides of the dirt road to it. We sat on the hill to see where the sun would hit at each time of the day. Watched all of the wildlife. It was like heaven. We had our dream house planned. Material things yes. Still important, I had allot of good times there, happy times. But yet, in the end I had to make a choice that would effect my children, husband, our lives. How lucky we were. We had enough money to pay for the property which had a pond on it, ten acres, it was beautiful. Lots of people thought we were crazy to pay what we did for that property. But we had always wanted it. Well just like life, you hit alot of obstacles. You always run into things that you didn't expect, when it comes to expenses. Right as the roof was going up the hurricane hit. Lumber prices trippled and needless to say, the loans started building.
Never the less, we raised two kids there and our little one for about four years. It was a place where everyone was always welcome. My kids always had friends there and it was far enough out of the little town. Just right. We had great times. I enjoyed every moment I had with my children there.Well until they became teenageers. lol. no really. I was going to live there forever. I'm not a person who likes change and never ever thought that I would leave my home. I used to tell my husband "If you are planning on selling this one, your leaving without me. lol" And now I was the one who needed to move.
When I went home I was happy to be there but scared to death. All of the what ifs started. What if I pass out from lack of oxygen and my little one is here alone.?? on and on. And who was there for me?? I thought everyone would miss me. Would come see me. Come help me or just visit. Another great lesson in life. Don't think that you are too important to people. Very good lesson for me. Just because they are important to me doesn't mean I am to them. In their defense everyone has their own family, responsibilities, commentments, lives. I felt sorry for myself cause nobody was there for me. But it really wasn't their responsibility. Although, I will tell you. This lesson also taught me to always be there for people who need me. I do my best. And I would have never made it through it if it wasn't for my kids, dad and mom, grandma, a couple friends, and although I have held a huge, silent grudge cause my husband was always at work, he in his own way was there.
Our house was big. I couldn't keep up with it. Just not enough oxygen. We were at about 7000 ft. in elevation. I started slipping back into deep depression, fighting like hell everyday, not to ever go to that dark
place again. I used to set there and look. Just look. I loved that place. I had a memory for every single spot in that house. I loved the property. But as time went on, I don't know. I just didn't know what to do. I knew that if we were forced to move due to my health it was going to be a huge deal. We were broke from doctor and hospital bills. Which makes you feel oh so much worse when your laying there in bed. I truely felt like my husband felt that I had caused all of this harship and recented me for it. He says no. But how could he not? And I did, I was sick for so long. It makes it so much harder when your racking up medical bills and can't even help pay for them. Im sure that he recented me and then I recented him for recenting me. Confusing.
My parents and grandma lived at about 5000 ft elevation. Which is weird that it made such a huge difference but I pretty much ran down here every chance I got.
It may have saved my life. I didn't need oxygen.
And I will tell you something that is kind of embarrassing because I don't know how many people have these feelings. But, when I thought it was going to snow. I took off. It didn't hardly snow where grandma was. I mean it freaked me out. Anxiety got out of control. I felt clastophobic, stranded. Alone, desperate. And I was raised in the snow. I drove in snow my whole life. I jsut dont understand. Also, the cold weather really started getting to me. I absolutely began to hate it. I swear it was harder to breathe. At grandmas only fifty minutes away it was alway aboout 15 degrees warmer. My whole marriage I never went anywhere without my husband, and now i was running constantly.
When I would get to lower elevation it was like something heavy was being lifted off of my chest. I didn't need oxygen. I loved it here. But I missed my house. And I know its just material; its the memories that get me.
I had never really been in a city. this is by no means a big city but it has everything you need. I was used to driving an hour to even get groceries. It was kina nice. I liked hearing neighbors for the first time. Made me feel better, which is weird cause I used to get so mad when someone would build a house around ours in the country. lol.
I like talkig to people and my daughter playing with the neighborhood kids. Little things, that made my life so much easier and my anxiety so much better.
At this time as I was going back and forth i felt good about it cause I felt good at the lower altitude. My grandma was getting sick though, she had allot of things wrong with her. So this was my chance; I took care of her. I loved being with her. It was sad though, she started just functioning, trying to make it through the day. I would try to make her laugh, she would. But you could tell it was jst for me. She also had a back surgery, and I'm sure that she never was the same.
So was trying to help grandma, kept going back and forth, and got a call. My grandma was really sick but wouldn't go to the doctor. She hated when I would come because she know I would call the ambulance. lol. So went down to get grandma to the doctor, well God had a different plan for me.
Sunday, September 6, 2009
Remembering ICU- pulmonary emboli
I don't remember a whole lot about the rest of that night. I do remember seeing myself in the bed. Watching myself. But I didn't die, so I don't know how I was watching myself. Its wasn't like I thought It would be if you were dying .I was looking, not worrying, not wondering, it was just peaceful.
When I woke up I remember thinking, "What am I even doing here?" enough is enough. Then my dad, mom, husband, and kids came in. That's what I'm here for. Although to be honest, I still kinda had a gloomy feeling about being there. But the day I woke up I thought allot. And although I know your not supposed to, I slipped into the, "Why is all of this happening to me?" What is it that I am supposed to do with my life? And I feel really bad because for moments when my family came in, i still didn't feel like I had anything to look forward to. I'm very blessed. I'm alive. I have a great family, well you know all families are a little nuts. lol. I went through horrible sadness, frustration, anger. I had life choices to make and really didn't want to at the time. What is it that Joel Osteen says?" Don't be a victim be a victor. I don't know why I have had all of this happen to me, but there is a reason and I just need to stick my heels in and push forward.
And I remember them standing and praying over me allot. I was having a hard time focusing. I was literally so scared. It was all touch and go I could be good one minutes and bad the other.
ICU was good. There were only certain hours for visitors and I think that I needed that. Everyone has advice and my mind was too tired. I should have done this, that. I shouldn't have done this, that. You know everyone is just trying to help. They really don't know what to say or do and don't' realize that sometimes its nice to just have someone sit there. Just sit. No talking.
I remember them bringing the phone into me and my mom was telling me that my little one was at the doctor and she was sick. I don't know what happened but something did on the monitors cause the nurse came in and took the phone and I was asked not
to talk on it for the rest of the day. It made my heart rate go too high. I acted like it bothered me but it really didn't. Any bad news, good news, it was all stress to me. Its a weird feeling when you feel like your mind can't handle anything else.
The routine was stressful. Heparin to keep my blood thin, everything you eat either clots or thins your blood it seems like. You can't get well without eating. I guess. Blood work constantly, all night, every night. They kept me in ICU for about two weeks. And I was happy about that cause I didn't know what I was doing. The nurses were great. But something happened there that still bothers me....
A doctor came in who wasn't my doctor just the one who had that shift. He gave me a pill and an aspirin. Now I do have to tell you that from all of these experiences I watch things closely, doesn't matter how close to death I am. I ask allot of questions, and I'm sure drive them crazy. Anyway, next thing I know my doctor comes in in his camouflage, Definitely not working that day but was checking on me. I immediately told him what they gave me, an estrogen pill and an aspirin, and that i told them that i wasn't suppose to have estrogen. They had already gave me that lecture and told me that I would just have to go through the menopause without anything.
Next thing I know, my doctor goes out and I could see everything through my window. He starts throwing crap everywhere. The other doctor is yelling, my doctor walks out. oops I started something.
So a couple hours later someone who i swore to God I would never say came in and knelt by my bed. She said if you ever say that I said this I will deny it. I told her that I wouldn't. She said very simply, "You know, you do have the right to ask for the doctors manual or handbook for the medications." and walked out. I didn't know what was going on and asked the nurse if I could use the phone. I called my doctor that I have went to for years and told her what had happened and what I should do. She told me never to take estrogen, that's probably what gave me the clots in the first place.
I waited for the next shift and politely asked for the doctor medicine handbook. It may not be called that. Any way I go to what they gave me and it says more or less never to give to someone with blood clots and something about a ridiculous chance it would give me more. why would that doctor do that. ? Are the doctors fighting about who's the smartest.? I didn't know. but when that doctor came in the next morning I told him never to give me it again. He said well I gave you aspirin to thin your blood also. I told him again. never.
Later a nurse showed me my papers which I requested to see and there was obviously a big fight going on one page had a big sticker NO ESTROGEN; It even went clear to the board I guess and there was a paper in there from the pharmacy that said NO ESTROGEN.
HOW FAST THEY CAN SAVE YOUR LIFE AND HOW FAST THEY could KILL YOU with a little pill!!!!
I had a small chip on my shoulder after a week or so and told everyone when I say I'm sick I'm sick. Several people have told me "Your always sick". Yea and I really enjoy it. I know that there are a few people who say they are sick all of the time. But the reality is, most people would not lay in a bed for months, and want to go to emergency rooms, and swear that there was something wrong with them if there isn't.
My dad. Oh how lucky a person could be. I never woke up in ICU when my dad wasn't sitting by my bed. My mom had my kids, and that was a huge job. My daughter saw me almost die, they were all going through there own separate little hell. I never thought that my husband cared much, but he is just the type of person that doesn't show emotion real well.
My mom took care of us for several more months. Probably 6. I was on cumadin for six months and my dad would take me to town and have my blood drawn three times a week.
When you have blood clots everything is affected. Everything that I liked to eat, I couldn't. The kinda rule of thumb was if its green it will make your blood clot. I still remember my doctor telling me that i could have a teaspoon of iceberg salad with dinner???? crazy. So many things clot your blood. You learn though.
Final real advice that I received was never to move back up to my house where the altitude was so high. Well that left allot of options. I was about to kill my mom. She is sick anyway. I had our dream home up there, kids, a husband, his job. Our life. What the hell was I going to do. My husband was so mad he didn't understand it at all. But it all made since once I moved home.
When I woke up I remember thinking, "What am I even doing here?" enough is enough. Then my dad, mom, husband, and kids came in. That's what I'm here for. Although to be honest, I still kinda had a gloomy feeling about being there. But the day I woke up I thought allot. And although I know your not supposed to, I slipped into the, "Why is all of this happening to me?" What is it that I am supposed to do with my life? And I feel really bad because for moments when my family came in, i still didn't feel like I had anything to look forward to. I'm very blessed. I'm alive. I have a great family, well you know all families are a little nuts. lol. I went through horrible sadness, frustration, anger. I had life choices to make and really didn't want to at the time. What is it that Joel Osteen says?" Don't be a victim be a victor. I don't know why I have had all of this happen to me, but there is a reason and I just need to stick my heels in and push forward.
But let me tell you; There were hundreds of times in the past few years even before this , I struggled to even get out of bed. Eat. I could have slept for a year and wouldn't have cared. In fact I loved to sleep. I would go days without taking a shower. I found it very hard to even function.
And I remember them standing and praying over me allot. I was having a hard time focusing. I was literally so scared. It was all touch and go I could be good one minutes and bad the other.
ICU was good. There were only certain hours for visitors and I think that I needed that. Everyone has advice and my mind was too tired. I should have done this, that. I shouldn't have done this, that. You know everyone is just trying to help. They really don't know what to say or do and don't' realize that sometimes its nice to just have someone sit there. Just sit. No talking.
I remember them bringing the phone into me and my mom was telling me that my little one was at the doctor and she was sick. I don't know what happened but something did on the monitors cause the nurse came in and took the phone and I was asked not
to talk on it for the rest of the day. It made my heart rate go too high. I acted like it bothered me but it really didn't. Any bad news, good news, it was all stress to me. Its a weird feeling when you feel like your mind can't handle anything else.
The routine was stressful. Heparin to keep my blood thin, everything you eat either clots or thins your blood it seems like. You can't get well without eating. I guess. Blood work constantly, all night, every night. They kept me in ICU for about two weeks. And I was happy about that cause I didn't know what I was doing. The nurses were great. But something happened there that still bothers me....
A doctor came in who wasn't my doctor just the one who had that shift. He gave me a pill and an aspirin. Now I do have to tell you that from all of these experiences I watch things closely, doesn't matter how close to death I am. I ask allot of questions, and I'm sure drive them crazy. Anyway, next thing I know my doctor comes in in his camouflage, Definitely not working that day but was checking on me. I immediately told him what they gave me, an estrogen pill and an aspirin, and that i told them that i wasn't suppose to have estrogen. They had already gave me that lecture and told me that I would just have to go through the menopause without anything.
Next thing I know, my doctor goes out and I could see everything through my window. He starts throwing crap everywhere. The other doctor is yelling, my doctor walks out. oops I started something.
So a couple hours later someone who i swore to God I would never say came in and knelt by my bed. She said if you ever say that I said this I will deny it. I told her that I wouldn't. She said very simply, "You know, you do have the right to ask for the doctors manual or handbook for the medications." and walked out. I didn't know what was going on and asked the nurse if I could use the phone. I called my doctor that I have went to for years and told her what had happened and what I should do. She told me never to take estrogen, that's probably what gave me the clots in the first place.
I waited for the next shift and politely asked for the doctor medicine handbook. It may not be called that. Any way I go to what they gave me and it says more or less never to give to someone with blood clots and something about a ridiculous chance it would give me more. why would that doctor do that. ? Are the doctors fighting about who's the smartest.? I didn't know. but when that doctor came in the next morning I told him never to give me it again. He said well I gave you aspirin to thin your blood also. I told him again. never.
Later a nurse showed me my papers which I requested to see and there was obviously a big fight going on one page had a big sticker NO ESTROGEN; It even went clear to the board I guess and there was a paper in there from the pharmacy that said NO ESTROGEN.
HOW FAST THEY CAN SAVE YOUR LIFE AND HOW FAST THEY could KILL YOU with a little pill!!!!
I had a small chip on my shoulder after a week or so and told everyone when I say I'm sick I'm sick. Several people have told me "Your always sick". Yea and I really enjoy it. I know that there are a few people who say they are sick all of the time. But the reality is, most people would not lay in a bed for months, and want to go to emergency rooms, and swear that there was something wrong with them if there isn't.
My dad. Oh how lucky a person could be. I never woke up in ICU when my dad wasn't sitting by my bed. My mom had my kids, and that was a huge job. My daughter saw me almost die, they were all going through there own separate little hell. I never thought that my husband cared much, but he is just the type of person that doesn't show emotion real well.
My mom took care of us for several more months. Probably 6. I was on cumadin for six months and my dad would take me to town and have my blood drawn three times a week.
When you have blood clots everything is affected. Everything that I liked to eat, I couldn't. The kinda rule of thumb was if its green it will make your blood clot. I still remember my doctor telling me that i could have a teaspoon of iceberg salad with dinner???? crazy. So many things clot your blood. You learn though.
Final real advice that I received was never to move back up to my house where the altitude was so high. Well that left allot of options. I was about to kill my mom. She is sick anyway. I had our dream home up there, kids, a husband, his job. Our life. What the hell was I going to do. My husband was so mad he didn't understand it at all. But it all made since once I moved home.
Friday, September 4, 2009
"You have ten minutes" I'm dying
I got up and went to bed. Feeling bad cause it was my anniversary, and I didn't care. Wasn't going to wake up. Got up and put my moms oxygen on thinking I was going to save my own life and was really tired. Weird feeling, slipping into sleep, telling everyone, somethings wrong! I'm not going to wake up take me to the hospital. Now in their defense, I had just gotten out of the hospital and wanted to go back. They said that they didn't want me to catch something at the hospital, my system was weak. It was flu season.It was going to be ok. I was not stopping. "Take me to the hospital or I'm calling the ambulance." I started falling asleep while dad was getting dressed to take me. I wasn't going to wake up.... My little one ran up on me and bumped me which jarred me and I woke up. Out of the blue she said "Take mommy to the hospital."
My oldest daughter insisted on going which was a huge mistake, but I was too sick to argue. So we got to the emergency room and I told them what was going on. That I felt like I wasn't breathing good, something is wrong. I feel like I'm not going to wake up everytime I start to go to sleep. My chest feels like I can't get a good breathe. On and on.
So the nurses put the regular things on me to check vitals and so on. They were all good, everything was fine.
I wasn't giving up. I had to turn into my little bitch mode. I told the nurse well give me something to go to sleep and watch what they do!!!!! I could see my dad and daughters face getting red. They knew I was getting pissed. The nurse leaves.
Doctor comes in and tells me that hes sure I'm having an anxiety attack and everything is fine they are going to give me something to settle down and it may make me sleepy. I was pissed but in my own way was getting what I wanted. I needed to make sure that when I went to sleep, I was still breathing. Started getting groggy. But it was a different feeling.
Went and got several tests. I was thinking about all the money this was going to cost.
Here came the doctor again and said that he found the problem. I had gall stones and one of them was completely blocking my gallbladder. I don't remember reacting. Looked at my dad, daughter, sister-in-law. They had tired, relieved faces. It was in the middle of the night. Maybe that's why they were tired, or maybe they were tired of me being in the hospital, not sure. Probably both. But I was right, something was wrong. But what about my breathing? They were sticking to the anxiety attack. So I got pissy again. "I have had anxiety attacks for 15 years! I know what they feel like! This isn't it! Just relax. So now another surgery for gallbladder, great.
I was tired of waiting, had my sister-in-law go see what was going on. She leaves.
The noises of the machines..... Oxygen level was dropping, looking straight into daughters eyes she looked scared.
I told them.
Doctor comes in followed by sister-in-law and several nurses, what are they all running for. Nurses moving quickly around room. Family looking startled. Doctor says, "This is how people die" you have lots of blood clots in both of your lungs, "We are giving the medicine ten minutes, if its not better you will have to be flown out on flight for life and we will have to put you on life support!" Rolling fast down hospital hall, groggy, nurses telling me drink, drink, hurry. I remember trying to drink while laying down? I'm not sure. They were trying to get heparin, I think its called down me to thin my blood. Out.... Back... "Am I going to die?" nurse says, "No" I remember asking that several times, wanting reassurance. Or was I just thinking it?
Big hospital doors, opening, rolling, opening, fast... fast... fast... Where was I going? Where is my family? Oh God I'm dying. I'm in ICU
My oldest daughter insisted on going which was a huge mistake, but I was too sick to argue. So we got to the emergency room and I told them what was going on. That I felt like I wasn't breathing good, something is wrong. I feel like I'm not going to wake up everytime I start to go to sleep. My chest feels like I can't get a good breathe. On and on.
So the nurses put the regular things on me to check vitals and so on. They were all good, everything was fine.
I wasn't giving up. I had to turn into my little bitch mode. I told the nurse well give me something to go to sleep and watch what they do!!!!! I could see my dad and daughters face getting red. They knew I was getting pissed. The nurse leaves.
Doctor comes in and tells me that hes sure I'm having an anxiety attack and everything is fine they are going to give me something to settle down and it may make me sleepy. I was pissed but in my own way was getting what I wanted. I needed to make sure that when I went to sleep, I was still breathing. Started getting groggy. But it was a different feeling.
Went and got several tests. I was thinking about all the money this was going to cost.
Here came the doctor again and said that he found the problem. I had gall stones and one of them was completely blocking my gallbladder. I don't remember reacting. Looked at my dad, daughter, sister-in-law. They had tired, relieved faces. It was in the middle of the night. Maybe that's why they were tired, or maybe they were tired of me being in the hospital, not sure. Probably both. But I was right, something was wrong. But what about my breathing? They were sticking to the anxiety attack. So I got pissy again. "I have had anxiety attacks for 15 years! I know what they feel like! This isn't it! Just relax. So now another surgery for gallbladder, great.
I was tired of waiting, had my sister-in-law go see what was going on. She leaves.
The noises of the machines..... Oxygen level was dropping, looking straight into daughters eyes she looked scared.
I told them.
Doctor comes in followed by sister-in-law and several nurses, what are they all running for. Nurses moving quickly around room. Family looking startled. Doctor says, "This is how people die" you have lots of blood clots in both of your lungs, "We are giving the medicine ten minutes, if its not better you will have to be flown out on flight for life and we will have to put you on life support!" Rolling fast down hospital hall, groggy, nurses telling me drink, drink, hurry. I remember trying to drink while laying down? I'm not sure. They were trying to get heparin, I think its called down me to thin my blood. Out.... Back... "Am I going to die?" nurse says, "No" I remember asking that several times, wanting reassurance. Or was I just thinking it?
Big hospital doors, opening, rolling, opening, fast... fast... fast... Where was I going? Where is my family? Oh God I'm dying. I'm in ICU
Thursday, August 27, 2009
Here comes depression; First 3 sugeries
Well the first two were not bad. C-Section, then I got my appendix removed. The third one; My back surgery forever changed the person I am or have to be.
When I was around 12 my spine started to curve; I don't remember but maybe two days even in school not being in pain. I tried not to let it get the best of me. I played volleyball, basketball, some track, was a cheerleader. They actually found my scoliosis during a sports physical. God that was a long time ago. I did you to the doctor but they said that I didn't need a brace because the curvature wasn't bad enough. Big relief for me, cause I was a kid and wanted to play my sports. I can't remember ever even taking a Tylenol back then. Which isn't the case now. Anyway, as I had my babies, my spine curved more with each kid. The pain became unbearable. I was about 22 with two kids and went to several doctors. Every time they said that I needed surgery. This was not an easy decision though. Who was going to take care of the babies, me, everything. I used to do so many things, loved sports, loved allot of things.
Finally went to childrens hospital where there was a doctor that everyone said was the best and I was able to make an appointment with her. She said that I needed surgery and they were talking about a new type of back surgery where you go through the stomach to place the rod. I left so confused. We had no insurance, it was going to be like 80,000 and so I would have to try to get some help. Overwhelming.
I decided to go to several more doctors to find one that would absolutely not do a surgery unless it had to be done. I didn't need a friend, didn't care if they had bed side manners, just needed someone straight to the point. Its weird how i was thinking when I went to each one. I didn't judge them but I was looking for someone who wasn't too young, too old. Not to be rude just wanted someone with experience but yet knew of the new procedure that they were saying I needed. After several months of driving two kids an hour from our house to the closest doctors I found a doctor who had the reputation of never doing a surgery unless it had to be done, especially back surgeries.
Went into his office, he came in and wasn't real friendly, kinda seemed overloaded? He looked at my x-rays and told me that if I didn't have surgery I would be in a wheelchair at 30. Not allot of options there, I had two babies to raise. I was told that the surgery would be approx. 6-8 hours, two weeks at least in the hospital, they couldn't guarantee that my pain would go away and that it was a good possibility I could have more. I thought that was impossible at the time. I had like a 30 percent chance of being paralyzed. And remember feeling well compared to the pain I'm in i don't care. Would not be able to care for myself for a long time. In fact before they did the surgery my whole family had to go down and agree to take care of me for a long time. Like a year. I could not lift more than a gallon of milk for months and would be in a brace for six months. Some of my times may be off a little its hard to remember that long ago. This is when I started fearing everything.
They decided to go through my stomach or side. I guess this was the best option for me because I was curving but also my body was turning or twisting. I have a scar from the right side of my bellybutton, clear around the side of me , and it ends at my spine towards the middle. Big scar.
I was scared, and really was never the same. I wonder if all the time I was under anesthesia didn't help so much.
AFTER SURGERY AND TIME IN THE HOSPITAL
Seriously, I wanted to die. The pain was unbearable and why didn't someone stay at the hospital with me? I had an iv in my neck to pump pain medication in me when I pushed the button. I kept pushing it. Over and over. No relief. I tried to call the nurse but whoever cleaned my room forgot to put the call button thing on the bed where I could reach it. I didnt have a thing on the bed it was one of those big things they attached to the beds where you push the button. I couldn't move. I couldn't role on my own. I would wait for someone to walk down the hall at night and yell help, help me, please someone come in here. I need help. Finally a nurse came in and I told her I was soaking wet, needed to be changed, and that the pain was unbearable. She said it was from post surgery and to push button as much as needed. I pushed it all night. Was soaked again, and again.
I looked and saw the phone called the doctor, I was a total bitch by then. He came in and shit hit the fan. So glad I picked him.... Come to find out the iv had slipped out and was going down my hospital gown all night. Thats why I was so soaked. He went nuts. And I got pretty good care after that. I just wonder how much I had messed myself up trying to get the call button . Not having pain medication after that horrible surgery.
They had to deflate one of my lungs, which never fully got any better, I had tube going to my lungs to get fluid out, bag on me so i didn't have to get up to go to the bathroom. God it was horrible.
My husband brought my 1 year old and 3 year old in to see me. My baby wouldn't even look at me. Broke my heart. I remember these kids, they were bringing this thing in to stretch me it looked like one of those things that you lay on and turn yourself upside down to stretch you back. I wasn't having that; no chance. I didn't care, I already felt like my back was going to collapse. They fused three or four vertebrae and took one of my ribs to fuse onto my back where they had put several screws in me. Thats why I was in a cast for so long, needed time to grow around my rod and make its own bone. I can remember my mom being there and she kept saying, please be nice, be nice. After that first night though, hell I dont know if it was the first, second, third. I was in a self protect mode.
I kinda screwed myself by trying so hard not to hurt myself. when i called the doctor and told them that I wasn't getting on that thing, he said ok, but it is used to get you used to standing so that when we fit you for the brace you wont pass out because you haven't been out of bed for so long that its going to be tough for you to stand that long. I told him I could do it. lol.
To guys come in to fit me for my brace; back then they were like braces that you get put on when you break your arm or leg. Hard, the ones that you write on. I dont know what they use now. I stood up and they started wrapping wet stuff around, around, around, I was getting light headed. They said hold on we are almost done, I knew I was going to pass out. Just kept hearing them say hold on and wrapping faster and faster. Yea next thing i know, I hear, Shes going. Done. I passed out. But they did get done. God that brace was heavy, I could take it on or off, kept it for years, threw it away. Wish I had it now.
It was time to go home; I was scared, I had had allot of nurses and doctors taking care of me. What now?
Drove home in my moms van; Laying on the seat in the back. Crawling to get back there cause I couldn't bend. Was wishing I would just die there. I was so hungry which was weird, remember telling them, and they just kept getting me home. Had to stop and get meds. GOD, why dont they just call those damn things in! The trip home was about two hours, every bump felt like I was getting hit in the back with a hammer.
I have tucked all of the pain inside for so long, but almost made me afraid to do anything the last 20 years for fear I would have to have another one. Completely dependent on everyone else for everything I did. Showers, they had to roll me, feed me, everything. Everyone was doing there best I'm sure. They told me to never ski, ride horses, anything that would push or impact my back. I was a kid though, well allot younger than now. I let the fear completely control my life. I know several people who have had this surgery and it didn't work so they had a second, third, fourth. I just can't.
AT HOME:
When I was around 12 my spine started to curve; I don't remember but maybe two days even in school not being in pain. I tried not to let it get the best of me. I played volleyball, basketball, some track, was a cheerleader. They actually found my scoliosis during a sports physical. God that was a long time ago. I did you to the doctor but they said that I didn't need a brace because the curvature wasn't bad enough. Big relief for me, cause I was a kid and wanted to play my sports. I can't remember ever even taking a Tylenol back then. Which isn't the case now. Anyway, as I had my babies, my spine curved more with each kid. The pain became unbearable. I was about 22 with two kids and went to several doctors. Every time they said that I needed surgery. This was not an easy decision though. Who was going to take care of the babies, me, everything. I used to do so many things, loved sports, loved allot of things.
Finally went to childrens hospital where there was a doctor that everyone said was the best and I was able to make an appointment with her. She said that I needed surgery and they were talking about a new type of back surgery where you go through the stomach to place the rod. I left so confused. We had no insurance, it was going to be like 80,000 and so I would have to try to get some help. Overwhelming.
I decided to go to several more doctors to find one that would absolutely not do a surgery unless it had to be done. I didn't need a friend, didn't care if they had bed side manners, just needed someone straight to the point. Its weird how i was thinking when I went to each one. I didn't judge them but I was looking for someone who wasn't too young, too old. Not to be rude just wanted someone with experience but yet knew of the new procedure that they were saying I needed. After several months of driving two kids an hour from our house to the closest doctors I found a doctor who had the reputation of never doing a surgery unless it had to be done, especially back surgeries.
Went into his office, he came in and wasn't real friendly, kinda seemed overloaded? He looked at my x-rays and told me that if I didn't have surgery I would be in a wheelchair at 30. Not allot of options there, I had two babies to raise. I was told that the surgery would be approx. 6-8 hours, two weeks at least in the hospital, they couldn't guarantee that my pain would go away and that it was a good possibility I could have more. I thought that was impossible at the time. I had like a 30 percent chance of being paralyzed. And remember feeling well compared to the pain I'm in i don't care. Would not be able to care for myself for a long time. In fact before they did the surgery my whole family had to go down and agree to take care of me for a long time. Like a year. I could not lift more than a gallon of milk for months and would be in a brace for six months. Some of my times may be off a little its hard to remember that long ago. This is when I started fearing everything.
They decided to go through my stomach or side. I guess this was the best option for me because I was curving but also my body was turning or twisting. I have a scar from the right side of my bellybutton, clear around the side of me , and it ends at my spine towards the middle. Big scar.
I was scared, and really was never the same. I wonder if all the time I was under anesthesia didn't help so much.
AFTER SURGERY AND TIME IN THE HOSPITAL
Seriously, I wanted to die. The pain was unbearable and why didn't someone stay at the hospital with me? I had an iv in my neck to pump pain medication in me when I pushed the button. I kept pushing it. Over and over. No relief. I tried to call the nurse but whoever cleaned my room forgot to put the call button thing on the bed where I could reach it. I didnt have a thing on the bed it was one of those big things they attached to the beds where you push the button. I couldn't move. I couldn't role on my own. I would wait for someone to walk down the hall at night and yell help, help me, please someone come in here. I need help. Finally a nurse came in and I told her I was soaking wet, needed to be changed, and that the pain was unbearable. She said it was from post surgery and to push button as much as needed. I pushed it all night. Was soaked again, and again.
I looked and saw the phone called the doctor, I was a total bitch by then. He came in and shit hit the fan. So glad I picked him.... Come to find out the iv had slipped out and was going down my hospital gown all night. Thats why I was so soaked. He went nuts. And I got pretty good care after that. I just wonder how much I had messed myself up trying to get the call button . Not having pain medication after that horrible surgery.
They had to deflate one of my lungs, which never fully got any better, I had tube going to my lungs to get fluid out, bag on me so i didn't have to get up to go to the bathroom. God it was horrible.
My husband brought my 1 year old and 3 year old in to see me. My baby wouldn't even look at me. Broke my heart. I remember these kids, they were bringing this thing in to stretch me it looked like one of those things that you lay on and turn yourself upside down to stretch you back. I wasn't having that; no chance. I didn't care, I already felt like my back was going to collapse. They fused three or four vertebrae and took one of my ribs to fuse onto my back where they had put several screws in me. Thats why I was in a cast for so long, needed time to grow around my rod and make its own bone. I can remember my mom being there and she kept saying, please be nice, be nice. After that first night though, hell I dont know if it was the first, second, third. I was in a self protect mode.
I kinda screwed myself by trying so hard not to hurt myself. when i called the doctor and told them that I wasn't getting on that thing, he said ok, but it is used to get you used to standing so that when we fit you for the brace you wont pass out because you haven't been out of bed for so long that its going to be tough for you to stand that long. I told him I could do it. lol.
To guys come in to fit me for my brace; back then they were like braces that you get put on when you break your arm or leg. Hard, the ones that you write on. I dont know what they use now. I stood up and they started wrapping wet stuff around, around, around, I was getting light headed. They said hold on we are almost done, I knew I was going to pass out. Just kept hearing them say hold on and wrapping faster and faster. Yea next thing i know, I hear, Shes going. Done. I passed out. But they did get done. God that brace was heavy, I could take it on or off, kept it for years, threw it away. Wish I had it now.
It was time to go home; I was scared, I had had allot of nurses and doctors taking care of me. What now?
Drove home in my moms van; Laying on the seat in the back. Crawling to get back there cause I couldn't bend. Was wishing I would just die there. I was so hungry which was weird, remember telling them, and they just kept getting me home. Had to stop and get meds. GOD, why dont they just call those damn things in! The trip home was about two hours, every bump felt like I was getting hit in the back with a hammer.
I have tucked all of the pain inside for so long, but almost made me afraid to do anything the last 20 years for fear I would have to have another one. Completely dependent on everyone else for everything I did. Showers, they had to roll me, feed me, everything. Everyone was doing there best I'm sure. They told me to never ski, ride horses, anything that would push or impact my back. I was a kid though, well allot younger than now. I let the fear completely control my life. I know several people who have had this surgery and it didn't work so they had a second, third, fourth. I just can't.
AT HOME:
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