Helping children deal with death, anxiety,seperation

Well if you have read my blog you know that I suck when It comes to dealing with death. But when your a parent you have to dig deep within and take care of your children. They are hurting probably in a different way and who know what they are thinking or the questions that they have.

Now allot of people told me to take my little one to a counselor. She had severe seperation anxiety, which I hadn't really heard of or ever dealt with. This had to be the hardest thing to watch ever. At first you think that if you just tell them you are not going to leave them, try to explain about death, heaven, they will be alright, but this was something that was not going away. My little one got worse.

God knows that she had reason. I was trying to live for my kids and damaging the hell out of them at the same time especially the young one. I did everything possible to reasure her that all was good, mommie was good, everything was going to be ok. It didn't work and was a couple years of heart breaking agony watching her go through this. She had watched me almost die a couple of times and kids aren't stupid. They listen. They hear. They know.
You can try to keep it from them, hide the horrible stuff, but they are smart and know whats going on.

She had moved to my parents with me, watched all of my illnesses, her big sister moved, her brother moved, her dad was living at our old house, her grandma honey had just died, we moved to a new place, and she started a new school. Just to mention the big things. I have so much guilt over this. Although you try so hard to protect the kids, they are suffering so much. She acted so strong and I think that finally she just broke.

Before I talk about  the seperation anxiety I just want to put down a couple of things that may help someone whos child is going through the loss of someone.

1.  We live really close to my grandmas old house and pass it everyday. She would cry horrible. At this time she was about 6.  She didn't want anyone else living in grandmas house and was angry. I let her write a letter to the owners of the house after talking to them about it. She wrote a long letter and asked them to please take care of her grandma honey's house. She went into specifics, which I think was good therapy for her. How to water the grass, what grandma liked and how she wanted someone to live there who loved the house. She basically asked them to take care of the house. I took her to the mailbox and let her put it in. Which I know your not supposed to do but they were watching. She smiled. Even if you can't put it in the mailbox you can pretend to mail it.

2. This worked good!   I take her to get balloons, which her and grandma had talked about. As many as she wants. She writes notes on them and we set them free. She watches very carefully. They go up so far and then you cant see them anymore. She says, "Grandma got it". And is calm again.

3.  I was really scared to do this but, when the people got all moved into grandmas they invited us in. I was scared and didn't think I could be strong enough for her. We had damn near lived there for years. But I had to do it. They took us to each room and let her look around. She told them stories about each room. Its weird there wasn't any grandma left there which is the way it is supposed to be I guess. It looked beautiful, grandma would have loved it. I realize that you cant do this with all losses but it helped actually both of us.

4. Eventually, I just had to go all out and try to explain everything to her. She doesn't let things go. I told her my beliefs. That grandma was so happy now. She was playing with her little boy and had so much family in heaven. Went into the pain. etc. At this stage I was still shattered, my gutt would hurt as im consoling her. I did belive what I was saying, but I was still pissed that she left me. Very selfish. I'm told thats a phase you go through I dont know.

5. I let her write letters to heaven for grandma and mailed them, or let her mail them.

6. And after three years of the hell of seperation anxiety she has a full schedule, gymnastics, gate, band, school. Dont give them too much time to think. I had to keep her busy. Although I felt like crawling in bed and crying. Just wanted to sleep. I had to keep her moving, which actually was a big help to me also. I didn't like it though. lol.

7. She made a photo album of her and grandma

8. I let her hang pictures of her. She put one right by where she sleeps. I wasn't sure if that was a good idea. But if they request it then why not. She still looks at it everymorning and is concerned that she is forgettting grandma.  So I encourage her to write down things that she remembers about her, anything. She has quite a collection.

9. She still sleeps with the blanket that grandma always used. Thats ok to me. So what. It was actually her blanket and grandma liked it so she let her use it. Now I will admit when grandma first died she wanted to wear one of her big nightgowns and I let her. She wore her nightgown to sleep for about a week and the phase was over. She said that it smells like grandma and "thats all I need"

10. Let them talk, talk, talk, if they will. I didn't know most answers. When I didn't know how to answer I just told her that. It will drive you a little crazy. Our minds are trying to process all of this shit and questions are coming left and right. She was bad with this, I mean all day everyday. So what I did was tell her ok, we are going to talk about anything on your mind, grandma, memories, whatever you want, but only at 6:00 at night. The rest of the day we are going to try real hard to be happy and look for things to be happy about. I was very surprised to hear her agree to that. It worked, everynight we would talk about the same stuff until I thought I was going to go crazy. Everntually the conversation got shorter. Then they stopped. She had either talked it out or found anotherway to cope that was working



I am sure I will think of more but thats a start. She has allot of faith in God and I don't even have to push her. Prayers really helped her, she would say them and then say now what do I say? I told her you say whatever you want to, so she will go on for fifteen minutes. She  tells God to say hi to grandma and did she get her balloons, on and on. Seems to really help her and actually I enjoy listening to her.

I never thought she would get better or get rid of the anxiety and sepreation anxiety, but she has. Thank God. Shes doing great. It took a long time. So much patience. But we did it.!!!!

Quick tips for depression

This is a hard one. If I wouldn't have had family I would have been screwed.
Now I still have depression and manage it, I function. Which is what most people have. But if you have depression to the point of not wanting to live you need to see a doctor.

I know allot of people who refuse to take medication. I personally won't go off of it again. I wish that I was one of the people who could get on it for a year or six months and feel normal again, but I'm not. I have tried going off my medication many times and will try no more. Apparently my brain needs it. I kinda have a rule that will sound stupid. But when you take medication like for anxiety, some people I guess pay big bucks for that stuff for the feeling. I can't tell that I take it so that is how I know that my body needs it. Make sense? Probably not.

There are people who use other things instead of taking pills. I know people who wont take them because you cant drink with them. They would rather drink. Thats their business. For me I take medication.

I was one of those people who had a hard time taking care of myself, yet nobody knew cause I was damn good at hiding it for a long time. I loved to sleep and to be honest when I'm stressed thats what I do sometimes. But I also walk allot now. I swim, ride my bike. This would have been unheard of years ago. And its not that I didn't want to, I just couldn't get the .... I don't know what you call it. My body hurt, my brain hurt. lol. Some people called me lazy. I think that when a person lays in bed for months and doesnt leave the house for months, its not because they want to something is wrong with them.

Just to brag for one sec. lol. My daughter and I were talking yesterday. The older daughter. I told her that I had to get out of the damn house, couldn't stand it anymore. I can't stay indoors all day now. This is the time I've been waiting for. I love to do things, and if I would have known that a walk or swim took this much stress away, I would hope that I would have done it years ago.\
Although when your depressed a walk, shower, anything is a huge effort.

When I first started walking I could only make it a couple of blocks because of my blood clots and my lungs. I went out everyday for two years and went just a little bit more each day. I'm up to two miles a day now! Its been a long road but well worth it. I love to look at the trees, animals, I even look at the rocks. lol. I try to enjoy every piece of that hour I'm walking.

So I guess what I'm saying is that I was about as low as you can get and you can get better. I'm not going to tell you that I feel great everyday. I'm in constant pain, and I truely still struggle with anxiety and depression. But I get my ass up and by God take that walk everyday.
And I stopped when my grandbaby was born and my husband moved down here. It sucked. My stress level went through the roof. So, I started again. I dont care if the roof is falling in I have to take care of myself at this point in my life.

I taught myself to swim last year and found that it is the only thing that doesnt make me sore or hurt my back. Great excercise for those of you with back problems, and has helped anxiety and depression. The hardest part is taking the time for yourself to do it.

When you are so far down that you cant do anything my advice to you would be to take one day at a time. If thats too hard take a half hour at a time. Dont lay in bed awake worrying about things at night. Go ahead and get up. Watch tv or read a book.

My schedule took years to get back. I guess thats ok cause it took years to get so bad. I was and pretty much still am a night owl. I think its the peace and quiet. lol.  I had to go from staying up all day and night. Then I would stay up all night and sleep all day. And after a long time I make myself go to sleep, although its usually late, and I make myself stay up during the day.
Now dont think that I just go to sleep, I'm far from that and don't understand how people just go to sleep, although I know I did for the first twenty years. I have to take medication for sleep also. Another crutch.
But if I dont look at the clock when I go to sleep my anxiety level is so much better, I'm not so tired in the morning. Another mind trick to me. If I look at the clock then I sit there and count how many hours of sleep I'm going to get, figure that is not enough for me, and I swear I'm tired in the morning.

I cant tell you how important sleep is to me with my depression. If I don't get sleep I get worse. Sleep is a must and although I say I make myself stay up all day. I will take a nap if i dont feel right. I have to have sleep. And if your not sleeping, you know. I did take stuff like Tylenol pm for years, it worked for sleep. Although some people feel tired the next morning, I did anyway. But eventually my doctor put on medication to sleep. I went through allot of different pills, nothing seemed to work. I now take a muscle relaxer and sleep great. It takes my spasms from my back away and I sleep well most of the time.

Weather has a big effect on me. I need sunshine. Which is actually a fact. The sun gives you a certain vitamin I think it is that is very important. Check into it but I'm pretty sure that you are supposed to get sun between the hours of 10 and 12 am. When it get cold and gloomy so do I. This really isn't in my head although I feel like it is sometimes. I really feel like shit when it is cold. I dont like winter at all and if I was rich I would have a place with palm trees and and ocean for the winters. Yea that would be great! I will tell you that although I know its bad for your skin, I will go to a tanning bed usually in the winter. It makes me feel better, I dont know if its the fake light, the heat, but it does the job.

Little things make people happy if they take the time to do them. I do things that I never used to but have found that it helps. Take my 2 year old nephew for a walk, they find the good in everything. Garden. Play with my dog, God I would have never done that before. Go somewhere with my kids, just little things that take up your day. Try to enjoy them. Make yourself, it takes practice. I have always enjoyed doing things with my kids though, but I take allot more time now to do it. I used to clean, clean, clean. Cook, cook cook, yea thats pretty much over. lol.

Find someone who relates to you and doesnt act like your crazy to talk to when your having a rough time.
Laugh, laugh, laugh. Or cry whatever you feel like.

I think that I live like I think others want me to still. I'm working on it.

For me: Faith in God has helped me more than anything. When nobody else is there for you, he always is.

Another thing that I don't know if other people go through so that bothers me is when I get sick. As in a cold or flu. My depression shoots sky high. It pisses me off. So remember if this happens to you and your getting sick thats why your feeling like your depression is worse. My dad always has to remind me of that.

If you are really depressed right now then your not going to be swimming etc. but talk to yourself. Sounds stupid but it will help after a while. Tell yourself, tomorrows a new day and will be better. The medication takes time. Although, they tell you that you won't feel a difference for like two months. I disagree with that, but thats just me. I could tell in a couple of weeks if it was working or not. Maybe not the full effect but you can feel your head getting a little bit clearer
Last thing I will put down for now is if you are going to have friends during this time, which I hope you have a couple to help you, they have to be positive with you. Hand around people that dont sit there and tell you what your doing wrong, do what your doctor says. Unless they have been through it, I might listen to them. Maybe they were able to find something that might help you.  God bless All of you

Struggling to write; Before the death of my friend, grandma, angel

I know that I have spoken allot about my grandma and how she helped me through the hard times. I wish she was here. Although I'm sure that she is glad she is with he little boy that she lost so young, her husband, brothers, sisters, mom and dad and so on. I have went through alot of different moods and emotions when it comes to here death but it was by far the hardest night of my life. I can go through stuff, but I hate to see others in pain. I do NOT handle death good at all. I suppose for selfish reasons. I get close to very few people but the ones that I do; I want around forever. So please bare with me, I am going to write this whole blog on my grandma and her death. The worst day of my life July17, 2006. I hope the date is right. Sometimes it seems it has been forever, then other days it seems she was just here. I moved a few blocks from her on purpose when I had to move from the blood clots. And I know that when I'm talking about how special she is most of you probably think, well so was my grandma. But I'm going to do my best at this and it may take several days to complete so be patient please.

As a child most of my memories are with her. Not because I didn't have good parents. She was the one who watched me and my three brothers while my parents worked. She was the most beautiful woman I had ever saw. Dark Black hair, perfect face, calm as an angel. She gained weight when she lost her little boy at the age of 3 or 4. She was still beautiful. Inside and out. I used to hug her and try to get my arms wrapped all the way around her. She gave us birthday parties every night that we stayed the night so we wouldn't bother papa. I used to watch her pick fuzz off of socks when they got out of the dryer for hours. She used to let us pick rubarb out of the neighbors yard and dip it into sugar. She always had breakfast, lunch, and dinner on, which after papa died and she never really cooked allot i figured that it may have just been expected of her, I dont know if she loved it?  The most important thing about my grandma was that from the time I was little till the time she passed away, she never, once, made me feel like I was in her way, bothering her, putting her out, i was always welcome and even if she was tired of me she never showed it. My parents used to take us to church every weekend and I never asked but later in life grandma told me that she was so mad at God for so long for taking her little boy. She didn't understand. I guess I would feel like that too. She wasn't hateful about it, and I think she really wanted God in her life. And he was. She used to read the bible to me everynight when I was sick out of proverbs. Until my nerves were bad. lol. And of all the things she could leave me when she died, she left me her bible. What a blessing. And it made my heart feel good when I went through it. She never lost her faith, there were pictures of everyone who had gotten sick in the family, letters, things to remember. I will cherrish it forever, although i do have to tell you I have only opened it once. Maybe someday.

I think that I used to talk to my grandma atleast five times a day as a teenager and into my twenties. She always answered. lol. Grandma did everything for everyone. Her family was her life. And she was our life. She held everyone together, and would be disappointed if she knew how it was now. But would understand. She loved being in the womens' club and throwing parties. lol. She loved to laugh and have fun. And second best thing between me and grams was that she was the one person in my life that completely knew me..... I could dance, sing, act like I was funny, never ever had to act like I was someone else around her. Boy. do I miss that.

I moved into this house in september, grandma came over with our help and probably a liitle coaxing. I was just trying to get her out of the house. She hadn't been out in sooo long. Well, it was aweful. She didn't say that but me and my husband were helping her up our little stairs in the front and it sounded like her bones were breaking when we would even put our hands under her arms to help her up. I never again asked her to come over or pushed her to get up. It was a horrible sound and very sad.

In the next months she would lay in bed, she had one of those hospital beds in her frontroom. She was so sick. One thing after the other. She had high blood pressure, and diabetes at the end. Every pill had a side effect and was taken care of by another pill. I tried to make her laugh, but it didn't happen often now.  I tried to make her want to live, but i think she had lost her will. She had her dog, which I swore saved her life when papa died, but I'm not sure she even worried about him anymore. Very sick. Thank God she had also given us her dog. I think that he has saved us. Just a little part of grandma. He ran to her house from mine for about a month. It was sad. Not so much anymore though. He is old but still something to hold onto.

The last time we took her to the hospital they had to transport her to a different city. about thirty minutes from here. At the hospital she was talking to me. I can remember trying to tease her. She told me never to let my little one be sad about her. I asked her to please fight grandma, please, what will I do without you. She sighed and said, "I'm not worth shootin" That used to be her little saying. I said "But who will be my best friend? Who will talk to me?" "She said, "I'm ready to go." I just ignored her.

She was transferred by ambulance and seemed to get worse right away. This first time I went in to see her, it was horrible. It wasn't even like grandma. I decided to stay a couple of nights with her after a few days. It was weird she would go from cardio, to neuro, to this and that. All over the hospital. The they told us that we had to wear a gown and mask to get into see her, I thought It was to protect her. But as Im writing I remember that she had something. Cant remember what it was. Her temperature was crazy, up and down. I was really worried about her heart. I could see her breathing and it looked like she was having allot of trouble. She was a tough woman too. I had never heard her moan like this. Just makes your stomach hit the floor. Grandma had survived breast cancer, something in her throat, both knees were operated on, both ankles had screws in them, she had her spine fused.
Just something she laughed about all of the time; A guy came over to check on her oxygen or some equiptment she was on at her house. I was in the kitchen and she said to him, "My family thinks that I have more than one screw loose. Do you think thats right?" He got so mad and said that was aweful for us to say. I made her tell him that she actually did have a real screw loose in her ankle, actually both ankles and he settled down. She laughed about that for a year. lol.

This first night I was at the hospital: to be cont. cant take anymore for the night.

Remembering ICU- pulmonary emboli

I don't remember a whole lot about the rest of that night. I do remember seeing myself in the bed. Watching myself. But I didn't die, so I don't know how I was watching myself. Its wasn't like I thought It would be if you were dying .I was looking, not worrying, not wondering, it was just peaceful.


When I woke up I remember thinking, "What am I even doing here?" enough is enough. Then my dad, mom, husband, and kids came in. That's what I'm here for. Although to be honest, I still kinda had a gloomy feeling about being there. But the day I woke up I thought allot. And although I know your not supposed to, I slipped into the, "Why is all of this happening to me?" What is it that I am supposed to do with my life? And I feel really bad because for moments when my family came in, i still didn't feel like I had anything to look forward to. I'm very blessed. I'm alive. I have a great family, well you know all families are a little nuts. lol. I went through horrible sadness, frustration, anger. I had life choices to make and really didn't want to at the time. What is it that Joel Osteen says?" Don't be a victim be a victor. I don't know why I have had all of this happen to me, but there is a reason and I just need to stick my heels in and push forward.

But let me tell you; There were hundreds of times in the past few years even before this , I struggled to even get out of bed. Eat. I could have slept for a year and wouldn't have cared. In fact I loved to sleep. I would go days without taking a shower. I found it very hard to even function.

Now by all means I wasn't brave inside but had to act like it for the kids and family, when they left I just remember asking for and kind of preacher, priest, someone who could help me cause my beliefs were going to crumble. They asked what religion I was and I told them. They said well our priest isn't in this late, we can call him. I told them to please get anyone up there. In my eyes they are all men of God. I just needed some reassurance. I don't know what I needed.
And I remember them standing and praying over me allot. I was having a hard time focusing. I was literally so scared. It was all touch and go I could be good one minutes and bad the other.

ICU was good. There were only certain hours for visitors and I think that I needed that. Everyone has advice and my mind was too tired. I should have done this, that. I shouldn't have done this, that. You know everyone is just trying to help. They really don't know what to say or do and don't' realize that sometimes its nice to just have someone sit there. Just sit. No talking.

I remember them bringing the phone into me and my mom was telling me that my little one was at the doctor and she was sick. I don't know what happened but something did on the monitors cause the nurse came in and took the phone and I was asked not
to talk on it for the rest of the day. It made my heart rate go too high. I acted like it bothered me but it really didn't. Any bad news, good news, it was all stress to me. Its a weird feeling when you feel like your mind can't handle anything else.

The routine was stressful. Heparin to keep my blood thin, everything you eat either clots or thins your blood it seems like. You can't get well without eating. I guess. Blood work constantly, all night, every night. They kept me in ICU for about two weeks. And I was happy about that cause I didn't know what I was doing. The nurses were great. But something happened there that still bothers me....

A doctor came in who wasn't my doctor just the one who had that shift. He gave me a pill and an aspirin. Now I do have to tell you that from all of these experiences I watch things closely, doesn't matter how close to death I am. I ask allot of questions, and I'm sure drive them crazy. Anyway, next thing I know my doctor comes in in his camouflage, Definitely not working that day but was checking on me. I immediately told him what they gave me, an estrogen pill and an aspirin, and that i told them that i wasn't suppose to have estrogen. They had already gave me that lecture and told me that I would just have to go through the menopause without anything.

Next thing I know, my doctor goes out and I could see everything through my window. He starts throwing crap everywhere. The other doctor is yelling, my doctor walks out. oops I started something.



So a couple hours later someone who i swore to God I would never say came in and knelt by my bed. She said if you ever say that I said this I will deny it. I told her that I wouldn't. She said very simply, "You know, you do have the right to ask for the doctors manual or handbook for the medications." and walked out. I didn't know what was going on and asked the nurse if I could use the phone. I called my doctor that I have went to for years and told her what had happened and what I should do. She told me never to take estrogen, that's probably what gave me the clots in the first place.

I waited for the next shift and politely asked for the doctor medicine handbook. It may not be called that. Any way I go to what they gave me and it says more or less never to give to someone with blood clots and something about a ridiculous chance it would give me more. why would that doctor do that. ? Are the doctors fighting about who's the smartest.? I didn't know. but when that doctor came in the next morning I told him never to give me it again. He said well I gave you aspirin to thin your blood also. I told him again. never.

Later a nurse showed me my papers which I requested to see and there was obviously a big fight going on one page had a big sticker NO ESTROGEN; It even went clear to the board I guess and there was a paper in there from the pharmacy that said NO ESTROGEN.

HOW FAST THEY CAN SAVE YOUR LIFE AND HOW FAST THEY could KILL YOU with a little pill!!!!

I had a small chip on my shoulder after a week or so and told everyone when I say I'm sick I'm sick. Several people have told me "Your always sick". Yea and I really enjoy it. I know that there are a few people who say they are sick all of the time. But the reality is, most people would not lay in a bed for months, and want to go to emergency rooms, and swear that there was something wrong with them if there isn't.

My dad. Oh how lucky a person could be. I never woke up in ICU when my dad wasn't sitting by my bed. My mom had my kids, and that was a huge job. My daughter saw me almost die, they were all going through there own separate little hell. I never thought that my husband cared much, but he is just the type of person that doesn't show emotion real well.
My mom took care of us for several more months. Probably 6. I was on cumadin for six months and my dad would take me to town and have my blood drawn three times a week.

When you have blood clots everything is affected. Everything that I liked to eat, I couldn't. The kinda rule of thumb was if its green it will make your blood clot. I still remember my doctor telling me that i could have a teaspoon of iceberg salad with dinner???? crazy. So many things clot your blood. You learn though.

Final real advice that I received was never to move back up to my house where the altitude was so high. Well that left allot of options. I was about to kill my mom. She is sick anyway. I had our dream home up there, kids, a husband, his job. Our life. What the hell was I going to do. My husband was so mad he didn't understand it at all. But it all made since once I moved home.

Months later;

The clearest memories were just living day to day. Trying to get through eachday. After months I did start doing a little more. Was the pain gone? Hell no! Was the pain worse? No. Thank God. I had succeeded in getting by that thirty percent chance of having more pain. It was a different pain now. And to this day. It is a dull everlasting pain. Always there. When the brace came off it was as if I had no muscles at all. Started taking muscle relaxers for a while also, which completely screwed me cause I would try to function and do things, get sore, take a pill, do more, get sore, take a pill. Looking back, wasn't giving myself a chance to build muscle. At that point though I was in a mode, a survival mode. I thought that they were kidding when they told me it would be three years before I could even start to live a somewhat "Normal" life. Three years was about right to function. But thats about it. It took about 5 years for me to feel like I had done the right thing. I wasn't afraid of pain, I can take allot of pain. I let the fear of having another surgery cripple myself. Not just my body, but my brain. You do your best, or atleast I hope that I did. We sold our house at this point and moved into a trailor. We were building another one. All of this writing has really made me realize when everything started. The anxiety, depression, sleep disorders. I remember staying up until 4 or 5 in the morning at the trailor. Still got up and got my daughter to school. Went through the whole day, never napped. Seems like I go from one extreme to another. I was defenitely getting depressed at that time and just didn't know what it was. I remember calling my parents and telling them that I couldn't breathe. Going out on the deck in the cold air to get a breathe. My dad even went as far as to see if I had a gas leak in my oven. lol. God. Started to isolate myself. Only went where I absolutely had to. Lived for my kids. And its amazing when your in this mode how you can come up with stuff to do with them, I had them all reading by age of 4. Did lots of stuff together. As long as it was in my comfort zone. I even had a brand new house to look forward too, our dream house. I was just depressed, and come to think of it now, this is when the breathing and anxiety started.

The start of Depression? Back surgery: Pure Hell

Walked in and my mother-in-law had chicken made. She had come from out of state. I just thought I was hungry. I still remember trying to eat it so she didn't think I was rude. God I still have a hard time eating chicken. Had a water bed which was out of the question for my doctor. Had to get a mattress. It was still laying on my bedroom floor. Went to sleep in my daughters room. Which in hindsight was a good thing. I think she kept me from going crazy. My mom was watching my son, the one year old. She brought him to see me everyday. He didn't want much to do with me. But, when I was making the decision to have the surgery, I planned it knowing what was going to happen. I knew that he wouldn't remember me not being able to take care of him because he was so young. Still bothers me to this day, I would never not have my kids. Completely broke my heart but I was in it now. It was what it was I guess. Just kept thinking that it won't be long. Little did I know.

Laying in bed a few days later and I was sure that my rod had broken. The pain in my back was already unbearable, what did I do? The pain was getting worse, called doctor. He said that I needed to give a urine sample so that he could see where the infection, fever, pain were coming from. There was no way in hell that I was going to make it back to the doctor. I had a great idea, there was a clinic just up the road from me. Called him back and he let me just send one up to it. I had a bladder and kidney infection.

Lying there day after day after day. My daughters room was pink. Walls were getting closer and closer to me. My grandma was watching my little girl. She was always such a good kid, until she turned 17.lol. Anyway, I couldn't take it anymore, called and had them send her to me. I let her sleep with me. Which really made everyone upset. But she was so good about it, I still call her my little pillow. She would lay against me, never hurt me. I was supposed to have a pillow in the back of me but i used her instead. It was so good to have her home.

Finally got to the front room and was sitting on the couch. My husband, mother-in-law and little girl with me. My mother-in-law, out of the damn blue says, you know she, my little girl, doesn't mind very well, she reminds me of ......, her youngest son. She said I never really liked him when he was her age. I flipped a cork. Really screwed myself too cause she was the one who was supposed to take care of me while my husband was working. I told her "Well if you don't like my kid, then you dont like me. And you can pretty much get the hell out!" She left the next morning. I didn't care she was mad anyway and I had only seen her a few times in our marriage.

I learned from that cause she put me in so many bad situations and I was trying to just get through each day. I could not take a shower alone. The doctor said that I couldn't, that if the soap even slipped and I went for it just out of a natural reaction, it would ruin everything cause I couldn't wear my brace in the shower. So I called my mom when I took showers. It was embarrassing enough with her. I barely new my mother-in-law, I wanted my mom in there with me. But it pissed her off and she would pout the whole day. Showers took hours. Or it seemed like it. I dont remember them having chairs for showers then. I have one now but that would have been like heaven. oh well.

I feel bad for writing this part because everyone was doing something; My husband was working, mom was taking care of youngest, but I remember lying there wondering were the hell everyone was. I would get so stiff, waiting, waiting, for someone to roll me over. They had cut muscles of course, and a nerve. I couldn't and still cant feel anything on the right side of my bellybutton. When my daughter needed something to drink, I would go into a mode. Had to do it. I would go to the frig, sit down on the floor with a cup and just tip the milk and pour it into the cup cause i was too weak to lift the milk. Hindsight: could have gotten a smaller thing of milk.

I can remember this day like it was yesterday; Well actually it was probably a month of days like this. My dad was putting a helipad in at the clinic I mentioned. Very small town. I could here his equipment running. Would wait for that sound of it shutting down. I knew that he was coming to roll me over. Listened for his foot steps coming down the sidewalk, it seems stupid but to get rolled felt so good. I was stuck in one position until someone would roll me.

I waited for little things, seeing my babies, my work-a-holic husband to get home, the next pain pill, which were taken after a month and I was given tylenol. yea they really helped. not.

I held grudges at the time. Where was everyone???? I guess they didn't like to see me like that. People just don't understand.

I remember a girl coming by that I knew but we weren't close at all. It was so nice. My mom was having a fit because she brought her kids and they were always afraid one of them would bump me or that I wouldn't be thinking and try to hold one of them. But it helped me. My grandfather came with his wife, brought me flowers from her garden, God that made my day, they were beautiful. One of my aunts came over on her lunch break and shaved my legs. My grandma and other aunt brought me a home-made milkshake. Those are the only ones that I remember.

I was still sending my daughter to my grandmas everyday, but she would come home at night. Thank God.

Month after month went by. I was moving but still dependent on everything for everyone. By moving I mean someone would get me up and I would walk around my house. I think this is when I started going into depression. I didn't care if I took showers, if I ate, if I made it through the damn day. I was making it for my kids. That's it.

Here comes depression; First 3 sugeries

Well the first two were not bad. C-Section, then I got my appendix removed. The third one; My back surgery forever changed the person I am or have to be.

When I was around 12 my spine started to curve; I don't remember but maybe two days even in school not being in pain. I tried not to let it get the best of me. I played volleyball, basketball, some track, was a cheerleader. They actually found my scoliosis during a sports physical. God that was a long time ago. I did you to the doctor but they said that I didn't need a brace because the curvature wasn't bad enough. Big relief for me, cause I was a kid and wanted to play my sports. I can't remember ever even taking a Tylenol back then. Which isn't the case now. Anyway, as I had my babies, my spine curved more with each kid. The pain became unbearable. I was about 22 with two kids and went to several doctors. Every time they said that I needed surgery. This was not an easy decision though. Who was going to take care of the babies, me, everything. I used to do so many things, loved sports, loved allot of things.

Finally went to childrens hospital where there was a doctor that everyone said was the best and I was able to make an appointment with her. She said that I needed surgery and they were talking about a new type of back surgery where you go through the stomach to place the rod. I left so confused. We had no insurance, it was going to be like 80,000 and so I would have to try to get some help. Overwhelming.

I decided to go to several more doctors to find one that would absolutely not do a surgery unless it had to be done. I didn't need a friend, didn't care if they had bed side manners, just needed someone straight to the point. Its weird how i was thinking when I went to each one. I didn't judge them but I was looking for someone who wasn't too young, too old. Not to be rude just wanted someone with experience but yet knew of the new procedure that they were saying I needed. After several months of driving two kids an hour from our house to the closest doctors I found a doctor who had the reputation of never doing a surgery unless it had to be done, especially back surgeries.

Went into his office, he came in and wasn't real friendly, kinda seemed overloaded? He looked at my x-rays and told me that if I didn't have surgery I would be in a wheelchair at 30. Not allot of options there, I had two babies to raise. I was told that the surgery would be approx. 6-8 hours, two weeks at least in the hospital, they couldn't guarantee that my pain would go away and that it was a good possibility I could have more. I thought that was impossible at the time. I had like a 30 percent chance of being paralyzed. And remember feeling well compared to the pain I'm in i don't care. Would not be able to care for myself for a long time. In fact before they did the surgery my whole family had to go down and agree to take care of me for a long time. Like a year. I could not lift more than a gallon of milk for months and would be in a brace for six months. Some of my times may be off a little its hard to remember that long ago. This is when I started fearing everything.

They decided to go through my stomach or side. I guess this was the best option for me because I was curving but also my body was turning or twisting. I have a scar from the right side of my bellybutton, clear around the side of me , and it ends at my spine towards the middle. Big scar.



I was scared, and really was never the same. I wonder if all the time I was under anesthesia didn't help so much.



AFTER SURGERY AND TIME IN THE HOSPITAL



Seriously, I wanted to die. The pain was unbearable and why didn't someone stay at the hospital with me? I had an iv in my neck to pump pain medication in me when I pushed the button. I kept pushing it. Over and over. No relief. I tried to call the nurse but whoever cleaned my room forgot to put the call button thing on the bed where I could reach it. I didnt have a thing on the bed it was one of those big things they attached to the beds where you push the button. I couldn't move. I couldn't role on my own. I would wait for someone to walk down the hall at night and yell help, help me, please someone come in here. I need help. Finally a nurse came in and I told her I was soaking wet, needed to be changed, and that the pain was unbearable. She said it was from post surgery and to push button as much as needed. I pushed it all night. Was soaked again, and again.

I looked and saw the phone called the doctor, I was a total bitch by then. He came in and shit hit the fan. So glad I picked him.... Come to find out the iv had slipped out and was going down my hospital gown all night. Thats why I was so soaked. He went nuts. And I got pretty good care after that. I just wonder how much I had messed myself up trying to get the call button . Not having pain medication after that horrible surgery.

They had to deflate one of my lungs, which never fully got any better, I had tube going to my lungs to get fluid out, bag on me so i didn't have to get up to go to the bathroom. God it was horrible.



My husband brought my 1 year old and 3 year old in to see me. My baby wouldn't even look at me. Broke my heart. I remember these kids, they were bringing this thing in to stretch me it looked like one of those things that you lay on and turn yourself upside down to stretch you back. I wasn't having that; no chance. I didn't care, I already felt like my back was going to collapse. They fused three or four vertebrae and took one of my ribs to fuse onto my back where they had put several screws in me. Thats why I was in a cast for so long, needed time to grow around my rod and make its own bone. I can remember my mom being there and she kept saying, please be nice, be nice. After that first night though, hell I dont know if it was the first, second, third. I was in a self protect mode.

I kinda screwed myself by trying so hard not to hurt myself. when i called the doctor and told them that I wasn't getting on that thing, he said ok, but it is used to get you used to standing so that when we fit you for the brace you wont pass out because you haven't been out of bed for so long that its going to be tough for you to stand that long. I told him I could do it. lol.

To guys come in to fit me for my brace; back then they were like braces that you get put on when you break your arm or leg. Hard, the ones that you write on. I dont know what they use now. I stood up and they started wrapping wet stuff around, around, around, I was getting light headed. They said hold on we are almost done, I knew I was going to pass out. Just kept hearing them say hold on and wrapping faster and faster. Yea next thing i know, I hear, Shes going. Done. I passed out. But they did get done. God that brace was heavy, I could take it on or off, kept it for years, threw it away. Wish I had it now.
It was time to go home; I was scared, I had had allot of nurses and doctors taking care of me. What now?
Drove home in my moms van; Laying on the seat in the back. Crawling to get back there cause I couldn't bend. Was wishing I would just die there. I was so hungry which was weird, remember telling them, and they just kept getting me home. Had to stop and get meds. GOD, why dont they just call those damn things in! The trip home was about two hours, every bump felt like I was getting hit in the back with a hammer.




I have tucked all of the pain inside for so long, but almost made me afraid to do anything the last 20 years for fear I would have to have another one. Completely dependent on everyone else for everything I did. Showers, they had to roll me, feed me, everything. Everyone was doing there best I'm sure. They told me to never ski, ride horses, anything that would push or impact my back. I was a kid though, well allot younger than now. I let the fear completely control my life. I know several people who have had this surgery and it didn't work so they had a second, third, fourth. I just can't.



AT HOME:

Waking up in anxiety attack

Woke up this morning with my stomach going in circles. Kinda like when you ride a roller coaster. Its scary when you wake up with these. I thought that I heard something in my house but had my German shepherd right next to me and she was fine. I knew I was just hearing things. But I was like frozen in fear. Where your so scared your body freezes. Ok what do I do. Breathe, I had to tell myself.Because what I do is hold my breathe. Took me a long time to realize that I can stop these attacks by breathing. So I'm sitting here at 3a.m. writing this down so that I don't forget what I'm feeling. I have to get up kinda the flight mode where you want to run. But i tell you, If you do get up when you have them it gives you time to remember to get your breathing under control. And there is just no sense in laying in bed going through this. Try not to think too much. Although, I was just thinking about my dreams. I remember them, I was dreaming that I was going on these rides and getting sick to my stomach. So something was bothering me. Its like when you dream that you hurt your hand and you wake up and your hand is numb from sleeping weird on it. I do not have anxiety attacks as bad as I used to and allot of it is just the knowledge of what they are and what to do with them. I knew that I was getting nervous last night. I have so much to do today. I usually only do a couple things a day that are extras. Like when I pay bills. Some people get really bad anxiety attacks when they pay bills. So here is what I have learned to do. Instead of paying them all at once. I will do one or two a day. Get them done and stop. I try to make doctor appointments between me and my daughter only one a month if that. I make sure she gets hers. Mine are kinda a waist of my time after fifteen years theres not much more they can tell me. They just have to see me because of my meds. I take citalopram for depression. I think that's a generic. It is supposed to have an anxiety helper in it. And alprazolam, generic for xanax, for anxiety. I know what they say about xanax but its the only thing in the last fifteen years that lets me function. So many people have problems with the meds. When people call me i ask them what meds they are on and they say, well I was feeling better so I went off of them. OMG I have done that out of pure guilt several times. I really do think that some people can take them for a half a year and not need them anymore. Not me. Been there done that. And the guilt was causing me so much anxiety so I had to make a choice, I have a family, finally found what works and may be on them for the rest of my life. Its worth it to be able to function on a day to day basis. If I can get off of them someday that would be great, if not then that's fine too. I have to think like that. Its not those of us who have anxiety attacks that really have a problem with the meds. Well I think we all have some self guilt. But its also our family, husbands, etc. saying you don't need meds to get through this. How do they know? Have they ever had one.????? Do what you need to do for yourself because being able to just function is probably your goal if your going through alot of them right now.

Putting Anxiety to Rest for now

I just want to say a few more things about anxiety, then I will stop on this subject. But please, If anyone reads this and is wondering if I have felt what your feeling, or any questions about my experiences please just ask.

I guess what I have probably learned the most from anxiety attacks and when I get them in my life is that they are a signal for you to take a breathe and slow down. Literally. But really maybe it is just your bodies way of telling you slow down, take a breathe, I'm tired.

I think that an anxiety attack can happen without warning and usually do with me. If it is happening when you are sleeping its really scary. My doctor called it "Busy sleeping" which I guess means even though you are trying to sleep you are still thinking. I used to add my checkbook up in my sleep, make a list of crap I had to do the next day, even make my bed while I was asleep. Well I thought I was. It was a bunch of little stuff, but I was amazed at how accurate i was with my checking account. lol

I still have problems with change; I hate change and really need to work on that. It freaks my system out. I hate appointments or something that I have to do and usually still cancel although not near as much.

I've learned that sleep is so very important. And yea I've went through those times where I didn't sleep for days. It sucks. I do take something to sleep, I have to, if I don't get sleep my depression and anxiety go crazy.

You cant die from this awful crap. Although you feel like you are. Even if you pass out. I asked my doctor what happens when you pass out, do you die. She said that no actually your brain resets and its actually better when you come too. Although I would never pass out if I had the choice and its hard for that to make you feel better when you are driving your kids around.

SO you have to breathe and what happens is something to do with when you hyperventilate you are exhaling too much carbon dioxide compared to the amount of oxygen that you have in your blood stream . That's why they put a bag over your mouth. Although some think this might be more dangerous now. I still cant do that but i will cup my hands over my mouth and nose then take in ten deep breaths. While I'm doing that I try to slow down my breathing.


Ask your family if they had or have it. They will probably say no cause you cant talk about it I guess, like it makes you a weak person, but I bet one of them do. Also, with depression. My mom told me one day "I think you need an anti-depressant" I said well how would a person know. She said well I'm on them. I proceeded to tell her that It would have been very helpful to know that years ago. lol. I never knew it. Like I said I guess they think its a weakness.

I still want to just take off and flee when I have one; Its like you just want to jump out of your body or start running away. Its normal. Although it sucks. I pace allot too. And my family can tell when I'm getting anxious because I will talk allot. Fast, and mix up my words. They don't know that I'm doing that just to mess with them. lol. Not really

Something that was really painful to me although I am getting a handle on it was the burning in my chest. It felt like something was just burning right through me from the inside. I was told by my doctor that it is the acid in your stomach, It comes up your chest and that's why it burns. I think I used to carry mylanta. I think that's what I used to carry in my purse. might want to check on that before using for the burning in your chest. lol.

I had a huge fear of dying, it controlled my life. I fear others dying also. After getting blood clots and really almost dying that fear has somewhat went away. And for those of you who believe in God, I have to say, when you feel completely overwhelmed, just tell him to take all of your worries, it is in his control. And like my uncle and God father told me, "When you say it you have to actually let him" I still catch myself saying it then the next day start my crap again and try to be in control of everything.

If you let people know what you are going through I promise you will find someone who is too and is just probably embarrassed to say it. which i have no idea why. I don't care I just tell them now. But I had to get to that point. It used to be so important for me for people to understand what I was going through. But you really cant think like that or your just setting yourself up for a let down. How could they if they haven't had one? And do they really even care? I don't know. It took along time for me to get to the point where if someone doesn't understand. Oh well. If they dont care, then they aren't worth having around. You dont need someone to even understand if you can just find someone who will let you talk and listen. I swear to God that took them right away with me if someone would just listen. If you cant find someone then I will listen.... Just have to tell me.

The "What ifs" Oh my God did I do this. Everything was well what if, what if, what if. Well after doing this with my doctor for over an hour she turned it on me. She would say well what if. What is the worst, very worst thing that can happen. Start asking yourself that. Its good. Well what if my house isnt clean. Umm nobody comes here anyway. Well what if I die. Umm you die. That one is still hard for me. Well what if she doesn't understand and they think I'm crazy. Well then screw them. Maybe they are the crazy ones. lol.

And last; Your going to get better. You are. You just have to sort your life and figure out what makes them worse, better, how to breathe, the right medications (If you believe in medication),
find good people who make you feel good. Seriously, it takes time but it does get better. Try not to over think everything, which i still do from time to time. When your up in the middle of the night don't sit there and think about stuff. Do a crossword, watch a movie, something that will take you mind off everything that you don't control anyway. And I'm sorry if this offends anyone but once in a while you have to just say F it. Maybe for a whole day. whatever it takes. Thank you for letting me go on and on. I hope that I have helped even one person. And I will make posts on anything else that I forgot to mention, things that may help you, or when I have another damn anxiety attack. Talk to you tomorrow. lololol. Just kidding

Anxiety attacks II- Other peoples' problems and you

If you read my first post on my first anxiety attack you know i left off with hospitals etc.

If you dont take care of yourself you cant take care of anyone else!!

This really affected my day to day life. I was scared to death to leave the house or be out of a "safe zone" found ways to get stuff done through magazines, mail, phone. Really screwed me up. My doctor was an hour away so needless to say I cancelled allot of appointments am ashamed to say lied about the reasons I couldn't make it. God forbid if it was snowing. But I did take notice when I went somewhere at how everyone was just moving on with their lives. Seemed like they didn't have a care in the world. Which looking back they all had problems but I was too focused on getting home. I have realized allot of things that really made me worse.

I was a perfectionist; Had to give that up. I would go on and on about how my house wasn't clean enough. I remember my doctor asking me what would happen if it isn't clean besides the fact that it drove me crazy. I said "Well what if someone comes by and its not clean" and what she said to me stuck. She said " Well if they are coming by to see how clean your house is and not to see you, do you really want them to even come by?" She was right. I still struggle with this until my body starts getting sick then I have to take a step back and knock it off.

My family used to say that if I don't have something to worry about, I will find something. They said you worry about the neighbors dog and they don't even have one. Really pissed me off when they said that. For years i was getting phone calls from people who were fighting with their spouses, girlfriends, boyfriends, they were broke, tired, sick, etc... I would worry about them all night long, no sleep. Then would have an anxiety attack over their problems. This is hard for me because I truly want people to be happy. Some people gossip or get a kick when someone has trouble it makes me sad for them. But I wasn't really in a position to have all of this negativity in my life..

The day I decided to change was when one of my friends called late one night and said that her husband was going crazy, the kids were crying, they were fighting, on and on. I was sick all night about it. So first thing in the morning I called her. She sounded so happy and said that everything was fine. That was it. This wasn't the first time. I had to worry about my own crap. And told her that. This was a breaking point for me I spoke, Let it out.

The best thing I think that I have ever done when It comes to anxiety and depression was to just tell people. Stop the excuses of why I cant go somewhere with them, or don't feel like it. Why I haven't taken a shower in days. I learned how to say NO. And after a couple of times it was so easy. Just no. It takes so much time and energy trying to explain yourself that you just get worse. It's all about them and what you cant do for them. Well you have to get a little bit selfish, which was really hard for me. But it made a huge difference in my health.

The amount of phone calls I would get say " Um.... This is so and so, and I heard that you have anxiety attacks and depression," they would start crying,"I can't take this anymore. I have never told anyone about this but I am depressed or having anxiety attacks. What do I do?" People who I would have never guessed. Rich, poor, it didn't matter. To be honest It made it a little bit harder for me cause i would get anxiety over their anxiety. But if you can find someone to just listen, not give you advice, just listen, you have it made. It helps so much. I found that my doctor was kinda like my therapist; She just listened. It was so much help. You probably wont believe this but, I'm pretty good at picking people out of a crowd that are depressed or have anxiety attacks.

So my point; TELL PEOPLE WHAT YOU HAVE OR ARE GOING THROUGH; IF THEY DON'T UNDERSTAND THEN THEY DON'T. BUT THEY WILL KNOW.



SAY NO! YOU DON'T HAVE TO BE RUDE, JUST FIRM. TAKE CARE OF YOURSELF FOR A WHILE, WHICH IS EASIER SAID THEN DONE. BUT TRY TO GET SOME TIME TO HAVE FOR YOURSELF.



ITS A FACT THAT MOST PEOPLE WILL HAVE DEPRESSION OR ANXIETY AT SOME TIME IN THEIR LIFE. SO THEY WILL KNOW THEN.



YOU HAVE TO LEARN HOW TO FUNCTION AGAIN. IT TAKES A LONG TIME OR MAYBE NOT. I'M STILL LEARNING.

"SAFE PEOPLE"

I call them safe people; I had maybe three when I was going through depression and anxiety attacks at 25. Then again at 30 with postpartum depression. They all had there own little areas in my life. One of them was my "safe person" to take me to the doctor. Another I would need to be around all of the time or I would actually get more anxious. And so on....... I wasn't independent at all!!!!!!!!!! And my kids were huge in functioning everyday. which was unfair to them. But if I didn't have my kids around me I felt completely empty. Its kinda funny cause if you dont have them around you its bad but when they are around you, all you want is a few minutes alone. I know sounds crazy. My husband always tells me im still like that. If they arent here I miss them. If they are I need a break.? Or they drive me nuts after like thirty minutes. lol. This only includes the 23 and 21 year old. My nine year old doesnt get on my nerves yet. lol. I have a dry sense of humor and as I keep writing you will see that I find myself funny. Most people dont. I dont know what to tell you. I guess either you think some of the things I write will be funny or you wont. Something all of this has taught me

DONT TAKE YOURSELF OR LIFE TOO SERIOUSLY! ITS OVER BEFORE YOU KNOW IT. WHEN YOUR DEPRESSED ITS GREAT TO LAUGH OR EVEN SMILE... AND YOU CAN EITHER LAUGH OR CRY; ITS UP TO YOU; OR YOU CAN DO BOTH. WHATEVER.

Others' reactions hit hard

I cant tell you how many people told me "You have to just fix your brain," or, "Its all it your head." Well yeah! thats obvious. "You have everything in the world" "What could you possibly be depressed about?" I was so sick and tired of hearing that. Obviously if we knew what was wrong we would fix it. The problem is that we dont know what is wrong. It has nothing to do with what you do or dont have in my opinion. I think it can hit anyone. It doesnt matter if you are living in a mansion or a hotel. Depression can hit anyone. But if they havent went through it be prepared for negative feedback. My doctor told me something that I will never forget. I was telling her about what people were saying and she said that I need to stay away from negative people and surround myself with people who may not understand but will at least try. Positive people. It also helped me to just say ok, I'm going to just take one hour at a time. Im not going to think about tomorrow and it is hard at first. And if I couldnt do one hour at a time i did fifteen minutes at a time. Although Im going to write tomorrow since its like one in the morning right now about my grandma moving in with me. Because at that point I didnt care if the floor literally fell in and sunk as far as it could go. I didnt care who was there or what they had to say. I just didnt care...... And you know what thats ok. I needed to not care for a while; I had overloaded myself from caring about everyone but myself for so long that it was ok not to care..... I know that now.....