The pure fear they have inside is heart breaking. She would not leave my side. And I really mean that. I could feel her eyes going through the back of my head when I would walk out of the room. I'm sure she thought I was going to die. At first you just tell them to stop it, but it becomes bad fast. You could have told her whatever you wanted to she was hell bent on not losing anyone else.
She would not go with anyone. I mean in a vehicle, to their house. Nothing. And you couldn't make her. I'm serious she would cause a scene and she wasn't just being a brat you could tell that her anxiety level was at a peak. Her face would turn red. I recently asked her if she still remembers the feeling and she said yes. She said "It was like being on a roller coaster all day long with your tummy" God, and I caused allot of this by being so sick.
I didn't know what to do and was very defensive over it. The fear that they feel is real and I felt so powerless. I spent everyday in her classroom or she wouldn't go to school. Doctors orders. she was put on medication which I hated but it got so out of control. I started substituting and she would leave class and come find me just to make sure I was there.
You have to realize this was so unlike her, she never wanted to be in trouble with the teacher, but this anxiety took her over. She was fragile, delicate and I didn't know how else to help her.
She had trouble that year in school and had "mean girls" which her mind could not handle. I knew how it felt but yet didn't know how to help my baby.
The constant question; They repeat things over and over. But hundreds of times a day. "Mom, will you be here?" I would say "Yes, of course." She would repeat that about ten times when she would even go to gym, the bathroom, it didn't matter. She would take a few steps and it would start again. "Will you be here when I get back?" Same answer. I tried to be so patient.
The thing that made me sick. I have always been here for my kids. Never missed a day with them. Why would she think I would leave her? Not die. Just leave her. I would never do that.
The mothers made a big stir about me being at the school when I volunteered. They thought I favored my kid. I've never been mean to any kid. They were mad when she got put into gifted and talented. And I didn't care that she got put in. I have been through raising two other kids. Although, it is good for her because she gets bored, which gives her too much time to think. I'm amazed at how petty parents are. The situation was explained and a doctors note accompanied about what she was going through, what she needed, her medication, what she had gone through and even how she was thinking and over-thinking everything. The teacher was great. I didn't just sit there I helped grade etc. And it was hard on me I was still recovering, but they didn't care. I have a real hard time with envious people. And they didn't even have anything to envy? What the hell?
I ended up having to move her to a different school. I could not let her go through it anymore. It wasn't even so much the kids. The moms. I just don't understand it. When people are going through hard times, I feel bad for them, try to help them, atleast understand them. They didn't care. I didn't give them the satisfaction of knowing why I moved her but she needed to heal. She needed time to get mentally well, healthy, and that is my job. Its my job to make sure she is in an environment to do that.
Now I know that people will think well kids have to go through stuff, it makes them stronger. blah blah blah. Not my kid and not when she is going through this. It is my job to protect her. So thats that.
I took her to my doctor and she was put on medication. It did help. She was on it for six months. Has been off of it for almost two years and is a different kid. I honest to God didn't think that she would ever get better. She did. And as my doctor told me "As you get better so will she" which really made me get my ass up and start pushing myself to do whatever I could. Then more the next day, more the next day. We are both better. Thank God. She doesn't have anymore to go, I still struggle but am so much better than I was.
My illnesses effected all of my kids and although I would like to jump off a cliff sometime, lol, well not really. My older daughter was fourteen and my son was 11 with the postpartum depression. They went through hell and I could see the worry in their faces. It was sad and I was dealing with so many illnesses at the time I couldnt even give them advice on how to handle it. My daughter was like a second mom to my little one which is why when she moved it was just another horrible thing in my babies eyes to deal with. My son had an anger issue, but probably has the biggest heart of all of us. He didn't know how to deal either. My husband just pretty much ran. Worked.
This illness is very serious in kids and its the saddest thing I've seen. There is no good way of handling it, just do your best. Be there no matter what. The doctor told me to let her take an album to school with all of our pictures. That made it worse but it may help some kids.
Probably the best thing that I did was to get her a pay as you go cell phone. It calmed her down allot, she had a connection and could get ahold of me at any time. You have to keep your word because if you don't you will be starting over. That comes from experience. If you tell them you will be outside a door, which we had to go over atleast twenty times in the morning, be there. Everytime. I promiss it will get easier. Realize that all they are thinking about all day is where you are what you are doing. My daughter is a couple years over her grade, some kids fall back. Don't feel like a bad parent if they do. You will just have to help them. They aren't thinking about the homework, their minds are scrambling about everything and its hard for them to concentrate.
I couldn't put her in any activities at first she just couldn't take it. But as she started getting better I did and it helped.
Absolutely do not let people tell them to "Just stop it" it doesn't work and it made her worse. It doesn't take much for them to get back to square one. Although i definetely would notify the school, teachers, anyone who could help her in a situation. They should be sympathetic and sincere about it. If they aren't going to be your going to have to take care of it. Some wont be so find the ones who will, if not stick to your kid like glue. I have no idea what you will do if you are working cause I don't think I could have done it.
Family is important although they have to know what the kid has and what not to say around them. Make them realize that these kids worry about everything, even if its not kid stuff. For Gods sake I had to take the bible from my daughter because she was reading her own thoughts into it, thinking she was going to hell for everything. She has it back now. They just over-think everything.
You might want to only let them watch certain things on tv. They think everything is going to happen to them, even if it is just a fiction show. My doctor said not to let her watch anything but cartoons for a while. It worked.
I just asked her what helped her: She said the cell phone, and that she still gets nervous sometimes.
Teach them how to calm themselves down when you are at home with them and it is quiet. Its important and it will help them, although when they are really bad they don't care if they are breathing correctly and it also depends on their age. Its tough. I would walk outside. She wanted to know what side of the house I was going to be on. If I had moved to another side without thinking you could hear her screaming for me. How horrible it must be to be that afraid... So I would have to tell her ok I'm going to the back but might be in the front in a couple of minutes. We started doing breathing and thinking excercises. It was so hard for her. I would tell her what I was going to do so she would know. I told her when you feel the anxiety and fear coming you take a deep breathe and then think "she isn't going to leave me" where did she tell me I would be? breathe go to the other side of the house. She would find me. It took a long time.
She doesn't carry the cell phone anymore, they usually wont use it anyway its just a mental thing. And her teacher was a life saver cause she would let her call me when she was getting anxiety. It goes from nervous, to sick to their stomachs, to full fledged anxiety fast.
Get a support base of people who may not understand but would do whatever it takes for your child. Positive people, older people are great cause most of them are calm and reassuring, like grandparents.
My daughter had to know what was going on from the time she woke up until the time she went to bed, and I couldn't tell her "shit happens" or "what if this happens what do you do?" She would have freaked out. But I got it covered with people without her knowing.
I'm telling you if you are going through this with your child you probably feel like your going crazy. The questions over and over alone really try your patience. Its really hard and just understand how hard it is for them. They are so miserable, they are hurting and we know why but we don't know why. I could tell her I would never leave her she would say I know but what if something happens and your not there. Well then so and so would be here. Well what if they weren't her? It went on for hours and I'm not kidding. She meant it too she wasn't just screwing with me.
Your life becomes their life. You can lay up all night and try to figure out how to fix it or you can realize that this is going to take some time. Go day by day by day.
After a year she started getting a little better. After about a year and a half she was allot better and then I started another phase which I don't know if it was right or wrong but it seemed like this was the time to try to make her a little stronger. I started playing the "what if " game with her. When she would say are you sure that you will be at door number two at 3:14, by the tree. I would say yes. And I told her that we were going to play this game everyday. So I would say but "What if" (start real small) I was standing on the sidewalk instead of by the tree what would happen? Her face would turn red, you could just see that it was messing her up. I said, well what could you do? She wouldn't answer so I would give her something she could do. See they aren't thinking well enough to go that far. I said could you look around for just a couple of seconds and see me on the sidewalk? She said yes, but please don't do that. We played this game and I would slowly progress to "What if I wasn't there at 3:14, what could you do? She could go back inside to her teacher. etc.
Although I played this with her I never did it for almost two years or she would have seriously had a meltdown. she had several when I was thirty seconds late.
It took two years for me to start pulling away a bit. By then her sister and brother moved back to our state which helped allot although it took her a while to even go with them. It sounds crazy to people who aren't going through it but I litterally took one step back from the school door at a time. One step. Eventually, I was almost to the end of the playground. And thank God I have not been in the hospital since.
Today, I take her to school, she rides the bus home!, I don't go to the school and volunteer, I work at a different school and she will ride the bus there! She will go with her sister and brother! She has stayed the night, well threes nights. lol. at a friends house! She goes to our old house with her dad when he is working on it for the people who bought it! Goes to band and gymnastics, still wants us to be there. Stays at my mom and dads. I'm just so happy for her. She is so much better.
To all of you who are going through this I just don't know what to say. It may not take as long. She was really bad. Hang in there and if you need someone to talk to you know just blog me cause I'm sure there are things that I have forgotten to mention. Be patient, dont let people tell you how to do your job, its not their kid or their hell that you are going through. And last but not least, they get better. I never thought she would but I can't believe how far she has come. God Bless You All.